Following your transplant, it’s normal to, once again, experience a variety of feelings. Although most patients look forward to the day of discharge with anticipation and excitement, don’t be surprised if you actually experience mixed emotions when the day arrives. Although you may be thrilled to be going home, you may also feel a bit overwhelmed and uneasy about being increasingly on your own. Up until now, your transplant team has carefully monitored you, and, after discharge, you will be expected to do an increasing portion of your care at home. Remind yourself that you will continue to be followed medically, but not as frequently. 

If you feel increasingly anxious, share your concerns with your team. Before heading home, make sure you thoroughly understand your discharge plan, any limitations or restrictions that you need to follow, and who to call in case of an emergency. Don’t be embarrassed to ask questions. All of this will help you feel more at ease and in control.

Also, be prepared to experience a variety of emotions, including a sense of relief and joy that your transplant is over along with some anxiety, a feeling of vulnerability, an uneasiness about the success of your transplant, uncertainty about your future, and, possibly, some degree of anger related to having Myeloma and having to undergo a transplant.

After discharge, remind yourself to be patient with your recovery. It is not unusual to feel discouraged if your recovery is not as smooth or as fast as you desire, and it may take you longer than expected to feel stronger and more like your old self. Each person moves at his or her own pace. It is important to be realistic about your recovery and realize that it is not uncommon to experience some setbacks during this phase.

All of the following feelings are considered appropriate during the post-transplant phase:

• A sense of worry and uneasiness
• Anxiety
• Uncertainty about your future
• A feeling of distress
• A deeper level of depression
• Grief and mourning for the life you used to have, and a sense of loss for the person you used to be
• A feeling of hope and optimism for the future
• A desire and determination to become more independent and regain control of your life
• A sense of inner strength
• A feeling of gratefulness
• A sense of resilience

If, however, you experience any of the following feelings post-transplant, immediately request professional assistance:

• Increased depression and a feeling of hopelessness
• A significant lack of motivation
• An inability to complete basic tasks of daily living
• Serious sleep difficulties
• Inability to control your thoughts or emotions
• Being noncompliant and failing to follow through with your care
• Withdrawing from others and isolating yourself
• Overwhelming negative thoughts
• Thoughts of harming yourself

Fortunately, these feelings do not occur frequently, and most patients respond well following their transplants.