Before starting treatment, patients and their caregivers should meet with the financial counselor at the facility where they will be treated. Each hospital will have its own financial counselor within each specific clinic (like the myeloma clinic or myeloma/lymphoma clinic). The counselor will help determined coverage and estimate out of pocket costs. There may be restrictions on treatment options covered by Medicare and Medicaid. After you have met with the counselor, the resources below can help bridge financial gaps.
Myeloma advocate and financial planner Diahanna Valentine helped compile this list of helpful financial resources. To contact Diahanna for professional assistance, email her at myfinancialcoach@healthtree.org.
Amgen Assist Step One Program, (1-888-427-7478) (Kyprolis, Xgeva)
Bristol Myers Squibb Patient Support Program (1-800-861-0048) (Revlimid, Pomalyst, Thalomid, Empliciti)
Genentech (1-888-941-3331) (Venclexta)
Janssen (800-609-1083) (Doxil, Darzalex)
Janssen Compass Program - (1-844-828-1234) Provides medication education and personalized patient support.
Novartis Patient Assist (1-800-245-5356) (Farydak, Zometa)
Sanofi Patient Connection (1-800-847-4877) (Sarclisa/isatuximab)
Takeda Here to Assist (1-844-817-6468) (Ninlaro, Velcade)
Be The Match (Post-transplant financial assistance)
Cephalon Care Foundation Provigil Patient Assistance Program - (887-237-4881)
Help for Single Mothers Paying Bills
The Leukemia & Lymphoma Foundation's Co-pay Assistance Program
National Organization for Rare Disorders
Patient Access Network Foundation
PAF - Patient Advocate Foundation
Patient Advocate Foundation (PAF) Co-Pay Relief Program
Multiple Myeloma Community Forums
Book: Understanding Multiple Myeloma by Christina Gasparetto, MD and Dharshanan Sivaraj
Pro-Active Myeloma Patient Toolkit by the Patient Empowerment Network
Cancer Support Community Resources and Helpline 888-793-9355
Frankly Speaking about Cancer/ Multiple Myeloma / Cancer Support Community
MyLifeLine - personal blog, calendar and discussion forums
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