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Financial & Helpful Resources
Before starting treatment, patients and their caregivers should meet with the financial counselor at the facility where they will be treated. Each hospital will have its own financial counselor within each specific clinic (like the myeloma clinic or myeloma/lymphoma clinic). The counselor will help determined coverage and estimate out of pocket costs. There may be restrictions on treatment options covered by Medicare and Medicaid. After you have met with the counselor, the resources below can help bridge financial gaps.
Myeloma advocate and financial planner Diahanna Valentine helped compile this list of helpful financial resources. To contact Diahanna for professional assistance, email her at myfinancialcoach@healthtree.org.
Pharmaceutical Company Patient Assistance Programs
Amgen Assist Step One Program, (1-888-427-7478) (Kyprolis, Xgeva)
Bristol Myers Squibb Patient Support Program (1-800-861-0048) (Revlimid, Pomalyst, Thalomid, Empliciti)
Genentech (1-888-941-3331) (Venclexta)
Janssen Compass Program - (1-844-628-1234) (Darzalex, Darzalex FasPro, Tecvayli) Cost & Affordability Support, Medication & Disease Education, and Self-Coping & Practical Support for Patient/Caregivers
Novartis Patient Assist (1-800-245-5356) (Farydak, Zometa)
CareASSIST by Sanofi (1-833-930-2273) (Sarclisa/isatuximab)
Takeda Here to Assist (1-844-817-6468) (Ninlaro, Velcade)
Other Patient Assistance Programs
Fund Finder (find funds from multiple organizations)
Be The Match (Post-transplant financial assistance) - 888-999-6743
CancerCare (Financial Assistance, Copay Programs) - 800-813-4673
Cephalon Care Foundation Provigil Patient Assistance Program - 887-237-4881
HealthWell Foundation Financial Grants, Transplant support Educational Resources - 888-999-6743
Single Mother Guide (Grants for Single Mothers, Food, Housing, Education, etc.)
Dollar For (Help with Charity care, Medical debt reduction or elimination)
The Max Foundation (International Support/ Assistance)
National Cancer Institute (cancer information and Education) 800-422-6237
National Organization for Rare Disorders,(NORD) - Patient Assistance Education 617-249-7300
NeedyMeds - Prescription assistance, Drug Discount card800-503-6897
PAF - Patient Advocate Foundation (Copay, Financial Grants, Education, Case Management) 800-532-5274
Ancan (Educational Resources)
Cancer Financial Assistance Coalition Financial Assistance Resource Pages)
CURE (Educational Resources & News)
Basic Living Expenses
American Childhood Cancer Organization
American Life Fund (Viatical Settlements) 877-421-0148 (Viaticle life insurance settlements)
Bone Marrow & Cancer Foundation (Financial Assistance for transplants) 800-365-1336
Equipment / Supplies Expenses
American Kidney Fund (disaster grants, transplant assistance Prescription assistance, Education Schlorships, Safety Net Grants)
CancerCare (Financial Assistance, (Copay Programs) 800-813-4673
Lymphoma Research Foundation (Financial Assistance, Educational materials) 800-500-9976
Stupid Cancer (Educational support, Mental health support) 212-619-1040
Housing During Treatment
American Cancer Society (Hope Lodges) - 800-227-2345
Bone Marrow & Cancer Foundation 800-365-1336
Healthcare Hospitality Network Inc - 800-318-8861
Hospitality Homes - 888-595-4678
Joe’s House - 877-563-7468
Lymphoma Research Foundation - 800-500-9976
Insurance Premium Expenses
American Kidney Fund (dialysis patients) - 800-638-8299
American Life Fund 877-421-0148 (Viaticle life insurance settlements)
Bone Marrow & Cancer Foundation 800-365-1336
CancerCare Co-Payment Assistance Foundation - 800-813-4673
HealthWell Foundation (diagnosis-specific) - 888-999-6743
Patient Advocate Foundation Co-Pay Relief - 800-532-5274
Patient Services, Inc, Accessia Health -800-366-7741
Prescription Expenses
CancerCare Co-Payment Assistance Foundation
Cancer Financial Assistance Coalition
GoodDays - (Copays, travel assistance, premiums assistance, diagnostic testing) 877-968-7233
Leukemia and Lymphoma Foundation
Needy Meds - Prescription Discount Card
Patient Access Network Foundation
Patient Advocate Foundation Co-Pay Relief
RxAssist 0- Data base of patients assistance programs/Prescription discount card
Helpful Resources
Multiple Myeloma Community Forums
Book: Understanding Multiple Myeloma by Christina Gasparetto, MD and Dharshanan Sivaraj
Pro-Active Myeloma Patient Toolkit by the Patient Empowerment Network
Cancer Support Community Resources and Helpline 888-793-9355
Frankly Speaking about Cancer/ Multiple Myeloma / Cancer Support Community
MyLifeLine - personal blog, calendar and discussion forums
Managing Mental Health After a Cancer Diagnosis
HealthTree's Disease Specific Social Media Platform
HealthTree's Facebook Groups
Family, Friends, and Caregivers of Myeloma Patients
General Multiple Myeloma Group
Deletion 17 Myeloma Patient Group
CCND1 (11:14) Myeloma Patients
MMSET/FGFR3 (4;14) Myeloma Group
Myeloma Light Chain Only Group
Myeloma Patients with Kidney Involvement
Financial & Helpful Resources
Before starting treatment, patients and their caregivers should meet with the financial counselor at the facility where they will be treated. Each hospital will have its own financial counselor within each specific clinic (like the myeloma clinic or myeloma/lymphoma clinic). The counselor will help determined coverage and estimate out of pocket costs. There may be restrictions on treatment options covered by Medicare and Medicaid. After you have met with the counselor, the resources below can help bridge financial gaps.
Myeloma advocate and financial planner Diahanna Valentine helped compile this list of helpful financial resources. To contact Diahanna for professional assistance, email her at myfinancialcoach@healthtree.org.
Pharmaceutical Company Patient Assistance Programs
Amgen Assist Step One Program, (1-888-427-7478) (Kyprolis, Xgeva)
Bristol Myers Squibb Patient Support Program (1-800-861-0048) (Revlimid, Pomalyst, Thalomid, Empliciti)
Genentech (1-888-941-3331) (Venclexta)
Janssen Compass Program - (1-844-628-1234) (Darzalex, Darzalex FasPro, Tecvayli) Cost & Affordability Support, Medication & Disease Education, and Self-Coping & Practical Support for Patient/Caregivers
Novartis Patient Assist (1-800-245-5356) (Farydak, Zometa)
CareASSIST by Sanofi (1-833-930-2273) (Sarclisa/isatuximab)
Takeda Here to Assist (1-844-817-6468) (Ninlaro, Velcade)
Other Patient Assistance Programs
Fund Finder (find funds from multiple organizations)
Be The Match (Post-transplant financial assistance) - 888-999-6743
CancerCare (Financial Assistance, Copay Programs) - 800-813-4673
Cephalon Care Foundation Provigil Patient Assistance Program - 887-237-4881
HealthWell Foundation Financial Grants, Transplant support Educational Resources - 888-999-6743
Single Mother Guide (Grants for Single Mothers, Food, Housing, Education, etc.)
Dollar For (Help with Charity care, Medical debt reduction or elimination)
The Max Foundation (International Support/ Assistance)
National Cancer Institute (cancer information and Education) 800-422-6237
National Organization for Rare Disorders,(NORD) - Patient Assistance Education 617-249-7300
NeedyMeds - Prescription assistance, Drug Discount card800-503-6897
PAF - Patient Advocate Foundation (Copay, Financial Grants, Education, Case Management) 800-532-5274
Ancan (Educational Resources)
Cancer Financial Assistance Coalition Financial Assistance Resource Pages)
CURE (Educational Resources & News)
Basic Living Expenses
American Childhood Cancer Organization
American Life Fund (Viatical Settlements) 877-421-0148 (Viaticle life insurance settlements)
Bone Marrow & Cancer Foundation (Financial Assistance for transplants) 800-365-1336
Equipment / Supplies Expenses
American Kidney Fund (disaster grants, transplant assistance Prescription assistance, Education Schlorships, Safety Net Grants)
CancerCare (Financial Assistance, (Copay Programs) 800-813-4673
Lymphoma Research Foundation (Financial Assistance, Educational materials) 800-500-9976
Stupid Cancer (Educational support, Mental health support) 212-619-1040
Home Health Care Assistance
Bone Marrow & Cancer Foundation 800-365-1336
Housing During Treatment
American Cancer Society (Hope Lodges) - 800-227-2345
Bone Marrow & Cancer Foundation 800-365-1336
Healthcare Hospitality Network Inc - 800-318-8861
Hospitality Homes - 888-595-4678
Joe’s House - 877-563-7468
Lymphoma Research Foundation - 800-500-9976
Insurance Premium Expenses
American Kidney Fund (dialysis patients) - 800-638-8299
American Life Fund 877-421-0148 (Viaticle life insurance settlements)
Bone Marrow & Cancer Foundation 800-365-1336
CancerCare Co-Payment Assistance Foundation - 800-813-4673
HealthWell Foundation (diagnosis-specific) - 888-999-6743
Patient Advocate Foundation Co-Pay Relief - 800-532-5274
Patient Services, Inc, Accessia Health -800-366-7741
Prescription Expenses
CancerCare Co-Payment Assistance Foundation
Cancer Financial Assistance Coalition
GoodDays - (Copays, travel assistance, premiums assistance, diagnostic testing) 877-968-7233
Leukemia and Lymphoma Foundation
Needy Meds - Prescription Discount Card
Patient Access Network Foundation
Patient Advocate Foundation Co-Pay Relief
RxAssist 0- Data base of patients assistance programs/Prescription discount card
Helpful Resources
Multiple Myeloma Community Forums
Book: Understanding Multiple Myeloma by Christina Gasparetto, MD and Dharshanan Sivaraj
Pro-Active Myeloma Patient Toolkit by the Patient Empowerment Network
Cancer Support Community Resources and Helpline 888-793-9355
Frankly Speaking about Cancer/ Multiple Myeloma / Cancer Support Community
MyLifeLine - personal blog, calendar and discussion forums
Managing Mental Health After a Cancer Diagnosis
HealthTree's Disease Specific Social Media Platform
HealthTree's Facebook Groups
Family, Friends, and Caregivers of Myeloma Patients
General Multiple Myeloma Group
Deletion 17 Myeloma Patient Group
CCND1 (11:14) Myeloma Patients
MMSET/FGFR3 (4;14) Myeloma Group
Myeloma Light Chain Only Group
Myeloma Patients with Kidney Involvement
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