Tracy Kummer

multiple myeloma coach since 2025

I was diagnosed with IgA Kappa MM November 2018 at age 48 after a rib fracture, fatigue and shortness of breath that became evident during my normal exercise routines. I was floored! I was an otherwise healthy, active mom of 4 late teen/early 20 year old kids, teaching yoga and working as a physical therapist. My whole life, my families' whole life changed. My history with myeloma includes an ASCT 4/2019 and treatment consisting of Revlamid, velcade and dexamethasone. My husband and I became vegan and I continued working part time, really focusing on my health. I achieved MRD- status that only lasted 15 mo and therefore my disease was classified as “high risk”. At this time My specialist recommended a clinical trial, hoping I would get the CART arm, but alas, I was placed into the second arm of the trial which was DaraPomdex. Since my disease had quickly gotten out of control, I realized I needed to ramp up my commitment to my health and I removed alcohol from my regime (which I really needed to do anyway) and reducing stress. I “retired” from PT, became a life coach and my hubby and I started traveling. Fortunately, I have almost 5 years of complete remission. I am looking to coach others not only to share what I've learned, but to also give the support only connection from someone who is going through this will know. Lucky for me I had an extremely supportive husband, but I still felt like I was missing the support of people in my situation. For me, FaceBook and support groups didn't cut it. I wanted to have a verbal conversation with someone my age and closer to my situation. As luck would have it, I have met a wonderful friend with MM, as well as a few others and we are able to support each other. I realized that this is the gift I want to share, being able to help others negotiate this new chapter of life and to feel supported during this sometimes scary journey. It's truly better together.

Cassandra McDonald

multiple myeloma coach since 2020

I was diagnosed in 2018 with IgA Kappa and IgA Lambda Myeloma or "Bi-Clonal" Smoldering Myeloma which since has progressed. My experience as a myeloma patient has solidified my belief that when life fights you, you have to fight it back. My biggest challenges are not the diagnosis but finding a specialist who spends the majority of their time researching myeloma cases and actually "listening" to me and not just looking at labs and symptoms to equate to how I'm feeling. However, I am blessed because my sons and grandchildren keep me going, and plus I still believe I have so many more years ahead of me to love and to give of myself. I am appreciative that I found the Myeloma Crowd, and that they have given me a voice. It is my pleasure to help you. Together, WE CAN!

Derek Johnson

multiple myeloma coach since 2023

I was diagnosed in 2019 at 34 years old, on my grandmother’s birthday. Though, symptoms were compounding for over 9 months. I had some cough and congestion that held-on for 1 1/2 months. Then I had extreme eczema on my hands which made it apparent my immune system was starting to go haywire. Finally, leading-up to diagnosis was extreme back pain and 1/2 hour long back spasms. Hindsight is 20/20. Obviously, I shouldn’t have gone 10 years without a blood test. With that in-mind, perhaps my Myeloma could have been caught sooner instead of 90% Myeloma concentration found at the ER with a subsequent 2 1/2 week hospital stay due to uncontrollable pain. Now, I advocate for anyone with odd symptoms to schedule a blood test as it could save their life! Though, it’s funny looking-back as my pup had regular blood tests… we’re educated that’s the best way to catch major health issues for our furry friends, right? My introduction to Myeloma and cancer was not gentle. I was kicked-into the fire pit. But thanks to close family support, my pup, and fortunately an A+ oncology team I’ve made it out the other side. As I was getting past the emergency phase and into the maintenance phase there were some real shockers. I learned that I was outside the normal age-range for this cancer. I learned nearly 6months after diagnosis that there is no cure. Thus, I’d be on cancer meds for the rest of my life. Finally, why would I need a stem cell transplant? I had a successful stem cell transplant experience in July of 2020. I’ll admit it was a rough ride, but the hospital food was beyond excellent and made it that much better. Having Cancer sucks. There’s no other way to put it. No one wants to receive news they or a loved one has cancer. Though, thanks to modern medicine, Multiple Myeloma can for the most part be kept under control and maintained. Sure, there may be some physical limitations due to cancerous effects on the body and/or side effects from medications. But thanks to new cancer medications, one can still live a life worth living with some alterations. Don’t allow this cancer to get the best of you…