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slhenk9
Multiple Myeloma Discussion 4h ago
pain management when on a trial study drug
any suggestions for pain management, my husband is on morphine right now but that doesn't always help completely...looking for suggestions
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dshaffer11
Multiple Myeloma Discussion 14h ago
Dr. James Berenson not effective for me
When I was first diagnosed with MM, I met with an Oncologist at my local cancer center and then through another article about best multiple myeloma doctors came across Dr. James Berenson in LA. I was able to get an appointment fairly quickly which maybe should have been a red flag. Anyway, I met with Dr. Berenson and decided to follow his protocol for treatment. The local oncologist when seeing the plan commented that he was recommending using a chemo agent doxorubicin that had been around a long time. I was also to get 40 mg of Dex twice a week and Velcade. The long and short of it is that it was not an effective treatment for me and once we backed off on the Dex due to the side effects, my myeloma numbers starting going the in the wrong direction telling me that the other medications weren’t doing much if anything. For me Dr. Berenson’s protocol was not effective and set my recovery back. In hindsight I wish I had listened to the other oncologist who was recommending a current standard of care protocol.
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periwinkleEagle
Multiple Myeloma Discussion 1d ago
Recent Study Stopping Maintenance Treatment After Two Years
Is anyone familiar with recent study conclusion supporting discontinuing maintenance therapy after 2. years
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Suemcenteegmailcom
Multiple Myeloma Discussion 2d ago
Immunotherapy induced colitis
It appears I have gotten colitis from a bispecific. Anyone else experience this? If so how was it treated?