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Find a community of multiple myeloma patients who care and are just like you

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Dave Braucht

multiple myeloma coach since 2023

Having faced 4 cancer diagnoses, including Multiple Myeloma and a related disease of AL Amyloidosis, I understand the shock and fear that patients experience. My personal journey, coupled with my father's and sister's own Multiple Myeloma and AL Amyloidosis diagnosis, treatments, and experiences has given me over 30 years of firsthand knowledge. I specialize in coaching patients, particularly those with AL Amyloidosis and other blood cancers like CLL, offering support and guidance based on my unique perspective. I'm passionate about empowering others with hope and knowledge, especially regarding AL Amyloidosis, which is often missed or misdiagnosed. I want patients to know there are many great treatments available and to avoid outdated information online. As a HealthTree Myeloma Coach since Fall 2023, and current Co-Lead of the Pacific Region Cure Hub Cure Team, I'm dedicated to supporting patients at all stages of their journey. My expertise includes: 
* AL Amyloidosis 
* Navigating Health Insurance and Financial Resources (I am a HealthTree Financial Coach) 
* Certified Cure Hub Coach
 * Long-term Daratumumab treatment insights 
 * Stem cell transplant considerations
 * Bispecific Antibodies Beyond patient advocacy, I connect with others globally as a Ham radio operator and serve as a volunteer examiner (VE), helping aspiring hams obtain their FCC licenses. My faith, family, and country are central to my life, and I enjoy camping, hunting, fly fishing, and time with my Golden and Flat-Coated Retrievers. Feel free to reach out anytime if you have questions! Even if you just want to chat and learn more about coaching with me, that's great. I can send you a link to my scheduling tool by email or text message. It's easy to find a time that works for us. I'm looking forward to connecting and helping you navigate your path.

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Lisa Hatfield

multiple myeloma coach since 2024

Radiation, surgery, chemo. In that order. It was decided while we sat in a sterile room at MD Anderson with my radiation oncologist who was speaking with my neurosurgeon, while both examined the images of my spine. Damaged by myeloma. A blood cancer. I was numb. A plasmacytoma was asserting itself and growing dangerously close to my spinal cord. The debate: radiation first vs surgery first. Chemo wasn’t even on the table. My spine had to be stabilized. I wanted to talk about the cancer and all the other lesions and malignant cells in my bone marrow. But that would have to wait. That was May of 2018. We left our daughters with family, on Mother’s Day. MD Anderson asked us to commit to being there a week. We were there a month. I returned home with a walker, a lot of pain, some fear, and a chemo cocktail recipe written by my medical oncologist (who I was finally able to meet). My chemo was administered in my hometown. Kyprolis, Revlimid, and dex. Kyprolis was not approved at that time for first-line therapy, but my myeloma specialist at MDA was able to get approval for me to receive it at my local cancer center. 6 months of KRd followed, while still recovering from major spine surgery. With a short break from KRD, I had stem cells harvested. And frozen. I opted to delay autologous stem cell transplant (ASCT), as I was still recovering from surgery and did not want to be away from our kids for another extended period. Revlimid was not my friend. Following the 6 months of KRD, I continued Revlimid maintenance for 4 years until the cumulative effects altered by quality of life. (Still dealing with those, even after discontinuing Rev almost two years ago). Most recent Clonoseq bone marrow biopsy showed 572 cells per million (my daughters’ birthdays and my anniversary date used to be the most important numbers to me… this “572” has crept a little too close to the space of those important numbers…I guess that’s how myeloma is). All of my decisions have been made with the two myeloma specialists I see on a regular basis. I am a HUGE advocate for expert opinions with myeloma. And… I believe that myeloma specialists are extraordinary people (mine are incredible human beings). I love good coffee, good chocolate, good books, good conversations, and good, genuine connections. I believe that connecting with others is a critical piece in our myeloma journey and enhancing our quality of life. Not every day will be good, but every day can have hope. I hope I can be a soft but strong support for others and a giver of hope.

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