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Terry Glassman

multiple myeloma coach since 2023

I was diagnosed with Multiple Myeloma / Primary Plasma Cell Leukemia on November 17, 2022. As a registered nurse with a background in ICU care and cardiac research, I was able to quickly understand the complexity of my diagnosis and treatment options, but that didn’t make the emotional side of the journey any easier. Today, I draw on both my clinical experience and my lived experience as a patient to help others navigate their own myeloma journeys. I’ve become deeply involved in the myeloma community, serving as a HealthTree Coach and leading a support group on Long Island as well as co-leading a high risk support group. Through this work, connecting with patients one-on-one and in group settings, I’ve seen how much it matters to feel heard, informed, and not alone. That sense of community can be just as important as the treatment itself. I felt called to this role because I truly believe we are meant to help one another. There is something uniquely comforting about speaking with someone who understands, not just the medical language, but the emotional weight that comes with a diagnosis like this. Even with a strong and loving support system, this has been an incredibly difficult experience. My hope is to offer others the understanding, empathy, and reassurance I wished for early in my own journey; support shaped by both my nursing background and what I’ve learned as a patient along the way. From a treatment perspective, I have had my stem cells harvested but have deferred transplant for now. I have the t(11;14) translocation and have been on Venetoclax for over three years. I’ve also been on Kyprolis for just about three years, and Daratumumab and I’m very open to sharing my experience with these therapies for those who are considering them. More recently, I was diagnosed with breast cancer and have undergone a lumpectomy and radiation. If you are navigating both a breast cancer diagnosis and multiple myeloma, I am especially open to supporting you through that unique and often overwhelming experience. If sharing what I’ve learned helps even one person feel less overwhelmed, less afraid, or less alone, then I’ve accomplished exactly what I set out to do, because no one should have to go through this alone.

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