Rodolfo Muller

multiple myeloma coach since 2024

I'm Rodolfo Muller. Recently, I changed my life of been a pediatrician Neonatologist to live with Multiple Myeloma since 10 months ago. During this time a have being meeting a lot of patients with my same condition and I try to help them with my experience but with medical evidence about this condition. In other topics I have been reading a lot information about nutrition and Cancer. The impact in the course of the Myeloma. This and others reasons are the fundamentals for apply to this coaching. Thanks Rodolfo Muller Boschetti

Kenny Capps

multiple myeloma coach since 2020

I was diagnosed with multiple myeloma in 2015. After decades as an athlete of questionable ability (and a writer and business owner of dubious intelligence), cancer changed my perspective. I focused on quality-of-life solutions. After a bone marrow transplant, I focused on distance running, cycling, and swimming once again. I discovered a coping mechanism and a way to combat pain, fatigue, and treatment side effects through purposeful movement and (mostly) focused nutrition. In 2018 I ran across North Carolina on the Mountains to Sea trail. I ran 1,175 miles in 54 days averaging 22 miles a day while undergoing maintenance chemotherapy. Today, I am still fighting cancer with daily chemotherapy and still training for ultramarathons and epic adventures. I am the Executive Director for Cancer Active, Inc. (throwing-bones.org), whose mission is to encourage all blood cancer patients to stay healthy and active through treatment. I was educated at the University of Georgia (AB), the University of Denver (JD) and I am currently a candidate for Masters at of Public Health at the University of North Carolina. I have three children, ages 23, 20, and 11 (as of 2024). I advocate for all individuals living with cancer, and want to encourage you all to keep moving forward. Every day is another opportunity to take a step. Being active is one of the ways to stay ahead of life and to enjoy it more.

Doug Keller

multiple myeloma coach since 2021

I was diagnosed in 2012 after I fell at my son's college graduation and broke my arm, which had a plasmacytoma in it. After radiation and induction therapy I had a stem cell transplant in 2013. Subsequently I was on various combinations of Revlimid, Elotuzumab, Daratumumab, Pomalyst, Kyprolis, and dexamethasone. I tried a clinical trial that was not successful for me and then had another SCT in 2020. After a year I relapsed again and had Carvykti CAR-T therapy in June, 2022. I was in remission for the first time, and stayed in remission for 28 months. Since relapsing in late 2024 I've been on bispecific antibodies, first teclistamab (Tecvayli) and now talquetamab (Talvey), with mixed success. I worked for 22 years in pharmaceutical research and was involved in the development of Sarclisa, which was personally very satisfying. I retired in January 2021. My wife is happy to have me doing things around the house and showing less stress. She has been a rock of support during this whole process, and my two sons are also very supportive. My quality of life is very good, and I have been enjoying getting back on the golf course now that I have time to play. I am also informally mentoring friends who have smoldering myeloma. In 2022 I had Carvykti CAR-T and went into remission for 28 months. I went back on treatment with teclistamab, which didn't work, and now talquetamab. Talquetamab alone didn't work, but in combination with lenalidomide it worked extremely well.