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dshaffer11
Multiple Myeloma Discussion 6h ago
CAR-T Carvykti Day 25 with high lymphocytes
I am at day 25 and my lymphocytes are high around 15. I have had two rounds of Dex and they aren't recommending more dex. Has anyone else had high lymphocytes and did they eventually go down?
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Pheba1
Multiple Myeloma Discussion 2d ago
This and That
Does any one else have other health issues beside MM. I have MM with 10% cryoglobulins, no bone lesions on PET scan. Currently showing remission. I have MGRS, which is Monoclonal Gammopathy of Renal Significance. My disease was discovered because kidneys were being wiped out and BP was spiking out of control. BP now 125/72. So, that is all good. I have had an illness called Polymyalgia Rheumatica (PMR) for over 20 years. Giant Cell Arteritis for at least ten years. Both cause pain and fatigue. Revlimid causes pain and fatigue. I also have SEVERE Diverticulosis. The severe in all caps is how the doctor wrote it on the colonoscopy report. Between that and the diarrhea caused by Revlimid it is a three ring circus. I have a chronic hip problem that ended up being torn hip tendons. That is going to require surgery. The tendon damage may be from inflammation from the PMR. So, how does a person cope? I think I have done a great job so far without getting down or depressed. I kept a positive attitude through SCT, and induction chemo. This hip surgery may be a bridge too far. Recovery takes about 6 months. I am wondering if there are others who are coping with multiple health issues.
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DIahanna • Admin
Multiple Myeloma Discussion 5d ago
Changes to Blood Cancers United Copay program
Hello All Effect Sept 1st, Blood Cancers United will be changing their copay program. They will only be providing copay assistance to Medicare, Medicaid and TriCare enrollees, shifting away from private insurance for specific disease funds. This shift will affect: ALL, CML, MDS, MPNs, Myeloma, and Waldenstrom Macroglobulinemia
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MyelomaValarie • Admin
Multiple Myeloma Discussion 5d ago
Return to work after treatment
For those who returned to work after treatment, what helped you figure out what you could realistically handle? Did you return gradually, change your hours or responsibilities, or have to advocate for accommodations at work? #blackhealth