Robyn Osborn

multiple myeloma coach since 2025

Hi! I was diagnosed with myeloma in June 2024, so I'm still relatively new to this myeloma game. I was diagnosed with MGUS in early 2020 and monitored for three years. By summer 2023, my MM specialist began to suspect Smoldering Myeloma, which was confirmed with a bone marrow biopsy in August 2023. At that time, he encouraged me to start MM treatment with DRVd, but I was reluctant because I had no symptoms and didn't have active MM, yet. I decided to get a second opinion, and that MM specialist recommended holding off on treatment until, and if, I developed active MM. By March 2024, I began to experience fatigue and shortness of breath, and in May 2024, a bone marrow biopsy confirmed that I now had active MM. On June 17, 2024, I started induction therapy on DRVd. About 4 cycles, my MM specialist decided I was not a good candidate for a SCT, so as a result, she had me complete 6 cycles of Induction therapy. In mid-November, I began experiencing peripheral neuropathy in my feet, which she attributed to the Velcade, so she stopped treatment. My kappa light chains and m-spike were within normal range, so she determined that I was ready to move on to maintenance. Those were the sweetest words I had heard in a while! In December 2024, I started on monthly Darzalex Faspro (Dara). Even though Revlimid is standard of care in maintenance, she decided against adding it back in due to the related side effects I had suffered during induction. So, for now, I am on maintenance with monthly Dara, with no noticeable side effects, I'm happy to add, and I also receive Zometa infusions every 3 months, which were started in July 2024. I am also happy to report that my kappa light-chains are still within normal range, and my M-Spike in April was zero!

Vic Arellano

multiple myeloma coach since 2025

I was diagnosed with stage 3 multiple myeloma in August 2022 after experiencing severe back pain, and finding that I had three compression fractures in my thoracic spine as well as several lytic lesions in my arms, legs and ribs. Upon diagnosis I completed induction therapy and underwent two stem cell transplants in January and June of 2023. I work with two oncologists, one near my local hospital for monthly maintenance treatments, and a hematologist/oncologist myeloma specialist who oversaw my SCTs. I am grateful that I am currently in remission. I attribute my successful outcome to finding a myeloma specialist shortly after my diagnosis, having the love and support of family and friends, strong faith, and being healthy and active my entire life. My desire is to give back to those who may need hope and help on their cancer journey, understanding that everyone is unique in their health and life experiences. My passion is to encourage and guide cancer survivors in safe and effective exercise when approved by their healthcare provider. I have a Masters of Science in Exercise Physiology and am certified as a Cancer Exercise Specialist by the American College of Sports Medicine and American Cancer Society.

Randi Schwartz

multiple myeloma coach since 2020

Hi! I was diagnosed with Multiple Myeloma at age 47 and had an autologous SCT in August of 2016. This summer, I will be celebrating my 5 year “new” birthday -a wonderful milestone! To date, my myeloma presents free of high risk genetic markers; however, it is accompanied by the complication of light chain deposition disease which compromises kidney function. As someone who loves the outdoors & endurance sports (running, biking, hiking, triathlon) dealing with kidney issues has been a tricky piece of my puzzle while I’ve worked to re-gain parts of my pre-myeloma life. Tricky as it may be, with the support of a good team of medical professionals, family, friends, and myeloma community paired with properly educating and advocating for myself, I have been incredibly fortunate to return to many of the things I love while managing this disease. For me, the power of mindset has played a huge role in living a vibrant life while co-existing with an incurable blood cancer. As a practitioner & coach of mind body medicine (and yoga instructor) I have personally experienced how powerful our daily practices and lifestyle can be in optimizing our sense of well-being and inner peace-especially while facing the many challenges and uncertainties of a cancer diagnosis. I have had the honor of sharing these practices with many cancer patients and others dealing with adversity and have witnesses the life changing results of developing a tool box of healthy coping strategies within a “safe circle of support.” Going through a cancer diagnosis is, no doubt, scary and can feel very lonely. My hope is to help any Myeloma patient I can through their journey; emotionally, physically, spiritually and in any way I can to help empower him or her through the process. Whether they want to laugh, cry, ask questions or compare notes, I want to support myeloma patients in navigating their needs and to never feel alone in doing so.