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Linda Carvalho

multiple myeloma coach since 2023

I’m 77 years old and was diagnosed with Multiple Myeloma after suffering a TGA (Transient Global Amnesia) attack 3/17/21. My blood work and CAT scan were abnormal, so a hematologist/oncologist insisted I come to his office for more tests the following week. My timeline: officially diagnosed 4/5/21; treatment began 4/22/21 (Revlimid, Velcade, Dex, DaraFaspro, and Xgeva); stem cell transplant 4/7/22 and maintenance therapy started 7/28/22 (Lenalidomide, Dara Faspro and Zometa). I relapsed 5/1/25 and my new therapy was Kyprolis, Lenalidomide, Dex, Dara Faspro and Xgeva. Three months later we discovered this combo wasn't working so Pomalyst was substituted for Lenalidomide. This combo did not drive my numbers down, so we have moved to CAR-T therapy. My myeloma and CAR-T specialists are at Mt. Sinai’s Myeloma Center for Excellence in NYC. My local oncologist in Toms River, New Jersey. My husband, adult children, grandchildren, family and friends (and my dog!) provide ongoing love and support in a variety of ways. I read and listen to webinars and podcasts to educate myself on an ongoing basis, since the treatment options for myeloma continue to change and improve. I have learned to adapt to the side effects: fatigue, GI issues, neuropathy, sleep issues. I'm at the gym 5 days/week, lifting heavier weights than I did prior to diagnosis. In addition, I'm an avid reader, gardener and emergency babysitter for my grandchildren. I’m grateful I am able to not let cancer define who I am.

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