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Sharlyn
Multiple Myeloma Discussion 19h ago
Steroid cataracts
Any program available to assist with out of pocket costs for cataract extraction and lenses. Cataract that are the side effect of steroid use.
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jleid
Multiple Myeloma Discussion 1d ago
Talquetamab stopping treatment
I have been MRD negative for almost 5 years on a clinical trial which has ended. I am told that I can stop treatment completely, or continue on my regimen of one injection every 2 months without side effects. If I stopped and then relapsed , most likely I would go back for Talquetamab but would need the step up process which might include a hospital stay, and to expect the usual side effects like loss of nails, loss of taste, etc . It is is a difficult choice. What do others think?
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Love
Multiple Myeloma Discussion 2d ago
ASCT
What length of time are you seeing of relief from MM after ASCT? I just saw my Oncologist holding form 8/2018 and two years off any therapy.