Melissa Rosenbauer

multiple myeloma coach since 2023

HOLA! I am Melissa Rosenbauer, an American living in Spain with my German husband, Thomas Bossert, who has multiple myeloma. Together, we have made it through the toughest year of our lives when Thomas (55) was diagnosed with MM in February 2022. But now we are on the other side and I am excited to help guide YOU through all that we've learned so you too can get to the other side of this. As a caretaker, I can speak to some specific areas of MM: - navigating care outside the US (specifically in the Spanish public system) - kidney failure and dialysis (Thomas was on dialysis for 4 months at diagnosis) - quad induction therapy (VRD plus Daratumamab) - strange side effects like hiccups - stem cell transplant - how to seek out and ask for help from friends & neighbors I am a happy, upbeat, positive person who chose to take this journey with love, understanding & acceptance. Yes, I've been through all the stages of grief at Thomas's diagnosis, but I've always tried to stay optimistic throughout. And this was in part with the help of HealthTree's coach program. Thomas & I connected with our coaches, Tad & Maci, very early on and they were with us every step of the way. I'd like to be with YOU every step of the way. From our experience, we know it's important to connect with people who are in similar circumstances, so I'll tell you a little bit more about me: I'm 45 years old, we do not have children (but one 4-legged fur baby, Lola!!) and I work as a textile & interior designer. I speak English, Spanish and German (I prefer English as my native tongue, but can help guide you in Spanish as well). I hope with my experience, we can find a connection and I can help you in YOUR journey. Let's get started and through this together!!

Jessie Daw

multiple myeloma coach since 2020

I was diagnosed with smoldering myeloma in late 2016, after a few years of having increasing severe respiratory infections every 2-3 months. I live in South Dakota, and see a local onc/hem doctor quarterly, with one of those quarterly visits replaced by a trip to Mayo Rochester to see a specialist. I considered some clinical trials early on in my diagnosis, but haven't entered one. My numbers have remained pretty stable since diagnosis. Recently, I went through full work-up for amyloidosis, and that was negative :-). I changed some things in my life in the year after diagnosis, including leaving my job and focusing on quality of life issues. In that respect, this diagnosis has been a blessing. Of course, I'd rather not have the diagnosis, but it spurred some changes that I don't think I would have made otherwise, and I feel like my life is richer because of those changes. I have become involved in patient advocacy, as I started South Dakota's first myeloma support group. I also have participated in an MMRF Moving Mountains for Multiple Myeloma event, and I really enjoy serving as a Myeloma Coach. I value the time I get to connect with others who have myeloma. We all have our challenges, and connecting with others around those challenges, as well as the good things in our lives, is really meaningful.

Nancy Brimhall

multiple myeloma coach since 2020

I am a caregiver for my husband Wayne who has been under treatment for IgA kappa myeloma for six years. He had known he had MGUS and then smoldering myeloma for nearly thirty years. He was exposed to formeldahyde and agent orange during his Army service. He has also had a number of other medical challenges including several major surgeries and episodes of pneumonia. I am a retired RN with intensive care, teaching, and home care experience. We have attended numerous seminars on myeloma and keep up with the latest research on options for treatment. Currently Wayne is stable on Darzalex monthly and Velcade every other week. He has previously had successful treatment with RVD but was unable to tolerate side effects. I have also taken additional training to learn about managing the financial aspects of having cancer. I have been a coach since the beginning of the program and find this supportive roll very satisfying.