Dorian Soper

multiple myeloma coach since 2024

I was Dx in December of 2020 with Smoldering MM, borderline stage 1, (R-ISS.) IGG Lambda ,1Q,11:14 (15%.) Pet scan, bone survey neg; no renal involvement. Started 24 month clinical trial in Feb, 2021: Dara, Revlimid and Dex. Completed study in December, 2022. I had a partial response. I progressed to MM in December, 2025. I am currently in a clinical trial again. I randomized to the second arm comparing Mezigdomide, Bortezomib and Dex (MeziVd) versus Pomalidomide, Bortezomib and Dex (PVd.) I was hoping to receive the Mezi arm, but did not get that arm. However, I am responding well and BOTH arms are important in clinical trials! I am the eternal optimist and strongly believe that the cure for MM is right arounds the corner. Coaching allows me to steer patients towards a the wealth of information offered by Healthtree. Knowledge IS the power for the cure! Healthtree is a wonderful platform to obtain that knowledge and receive the support you deserve throughout your MM journey. What can I do to help?

Linda Carvalho

multiple myeloma coach since 2023

I’m 77 years old and was diagnosed with Multiple Myeloma in April 2021. My Myeloma History: My first line of treatment was quad therapy: Revlimid, Velcade, Dex, and Dara Faspro, plus Xgeva. I had a stem cell transplant in April 2022, followed by maintenance therapy: Lenalidomide and Dara Faspro, plus Zometa. I relapsed May 2025 and my new therapy was Kyprolis, Lenalidomide, Dex, Dara Faspro plus Xgeva. Three months later we discovered this combo wasn't working, so Pomalyst was substituted for Lenalidomide. This combo did not drive my numbers down, and I chose to have CAR-T therapy (Carvykti) in June 2026. My Areas of Expertise: *Help with New Diagnosis *Navigating Relapse *Stem Cell Transplant experience *CAR-T Cell therapy experience *Physical Health, Nutrition and Exercise *Managing side effects *Working with a myeloma center and local oncologist *Living with Myeloma About me: My husband, adult children, grandchildren, family and friends (and my dog!) provide ongoing love and support in a variety of ways. I read and listen to webinars and podcasts to educate myself on an ongoing basis, since the treatment options for myeloma continue to change and improve. I have learned to adapt to the side effects: fatigue, GI issues, neuropathy, sleep issues. I'm at the gym 5 days/week, lifting heavier weights than I did prior to diagnosis. In addition, I'm an avid reader, gardener and emergency babysitter for my grandchildren. I’m grateful I am able to not let cancer define who I am.

Laurie C

multiple myeloma coach since 2023

I was a 57 year old female when diagnosed with high risk [t(4,14)] IgG Lambda light chain Multiple Myeloma on Nov 1, 2021. An MM plasma cytoma cracked cracked my T4. I had 4 cycles of KRd, then an autologous stem cell transplant mid June 2022. I resumed treatment September '22: on Revlimid 10 mg daily and Velcade 100 mg 2 x per month. I am just changing to Revlimid 5 mg + Velcade 2x monthly due to bad headaches and blurry vision. I also got shots of Xgeva once every 3 months for bone strength, this is now being changed to every month. I stopped Revlimid maintenance in June 2024. I stopped Velcade maintenance in June 2025. I received Xgeva every month in 2024 until October 1, 2024 when it was stopped due to oral surgery. My doctor forgot to give me a bisphosphonate bridging therapy in mid 2025 and by September 2025 I had ten cracked vertebrae due to the denosumab rebound effect. I can talk to people about life hacks for a successful autologous stem cell transplant. I can talk about what I know about high risk MM. I can talk about the importance of managing your bone strengthener properly and what happens if your doctor forget a dose. I read all of the Myeloma Research that I can find. I am still working. I would like to bring kindness and support to the lives of those diagnosed with Myeloma. WAYS I CAN BE HELPFUL: tips on having a great bone marrow transplant; how to prepare questions to discuss with your doctor, how to help yourself heal through diet, music, exercise, reading and love. Understanding blood test changes. I can support patients in English and in French. I read a lot about new CAR T therapies and related clinical trials for my work. Please write me! My email is HEALINGMYELOMA@GMAIL.com I AM NOT THE BEST RESOURCE FOR: discussing issues related to end of life, grief management, palliative care, prognosis, etc. I am not knowledgeable about anything related to insurance issues and or the health insurance appeal process. healingmyeloma@gmail.com IS MY EMAIL healingmyeloma.blogspot.com IS MY BLOG I love coaching, so please email me HEALINGMYELOMA@gmail.com Wishing you peace and love.