Avatar

Your Feed

Filter by
See content from
Avatar
DIahanna • Admin
Multiple Myeloma Discussion 2h ago
Changes to Blood Cancers United Copay program
Hello All Effect Sept 1st, Blood Cancers United will be changing their copay program. They will only be providing copay assistance to Medicare, Medicaid and TriCare enrollees, shifting away from private insurance for specific disease funds. This shift will affect: ALL, CML, MDS, MPNs, Myeloma, and Waldenstrom Macroglobulinemia
Avatar
MyelomaValarie • Admin
Multiple Myeloma Discussion 2h ago
Return to work after treatment
For those who returned to work after treatment, what helped you figure out what you could realistically handle? Did you return gradually, change your hours or responsibilities, or have to advocate for accommodations at work? #blackhealth
Avatar
slhenk9
Multiple Myeloma Discussion 8h ago
any one on the JNJ trial
my husband has been on the JNJ trial since July 1 and has been experiencing knifing pains in back and lower back....been in hospital 5 times and maybe 12 days....just can't stay at home cause he can't get out of bed with the pain at times and had to call the ambulance twice....anyone else heard of this...are we the only ones experiencing this
Avatar
JennG
Multiple Myeloma Discussion 2d ago
Alternative support
Hello! I’m scheduled for SCT in September. I’m working with a PT to be as fit as possible and feel good about that but I’m wondering if anyone has found an alternative treatment that supports their care. I want to feel like I’m doing everything in my power to get myself back to full health. Thanks!
Avatar
Nancy
Multiple Myeloma Discussion 3d ago
Sharing Experiences With Bispecific Therapy?
AI-generated title
Interested in patients experience with bispecific therapy.