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dshaffer11
Multiple Myeloma Discussion 1d ago
CAR-T Carvykti Day 25 with high lymphocytes
I am at day 25 and my lymphocytes are high around 15. I have had two rounds of Dex and they aren't recommending more dex. Has anyone else had high lymphocytes and did they eventually go down?
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Pheba1
Multiple Myeloma Discussion 3d ago
This and That
Does any one else have other health issues beside MM. I have MM with 10% cryoglobulins, no bone lesions on PET scan. Currently showing remission. I have MGRS, which is Monoclonal Gammopathy of Renal Significance. My disease was discovered because kidneys were being wiped out and BP was spiking out of control. BP now 125/72. So, that is all good. I have had an illness called Polymyalgia Rheumatica (PMR) for over 20 years. Giant Cell Arteritis for at least ten years. Both cause pain and fatigue. Revlimid causes pain and fatigue. I also have SEVERE Diverticulosis. The severe in all caps is how the doctor wrote it on the colonoscopy report. Between that and the diarrhea caused by Revlimid it is a three ring circus. I have a chronic hip problem that ended up being torn hip tendons. That is going to require surgery. The tendon damage may be from inflammation from the PMR. So, how does a person cope? I think I have done a great job so far without getting down or depressed. I kept a positive attitude through SCT, and induction chemo. This hip surgery may be a bridge too far. Recovery takes about 6 months. I am wondering if there are others who are coping with multiple health issues.