Todd Cook

acute myeloid leukemia coach since 2025

I was diagnosed with Multiple Myeloma in Apr. 2023 and had a stem cell transplant in Sept. 2023. I am on Lenalidomide 10 Mg maintenance medication. Born in 1956. I am a pastor of a Baptist Church and was a hospice chaplain for over five years and crisis counselor for 13 years.

Robert Hairston

acute myeloid leukemia coach since 2021

My primary doctor, Dr. Raymond Brewer, was concerned about the results of urine analysis completed during a routine yearly examination.; specifically the creatinine level. Thus he referred me to a nephrologist, Dr. Soni, who then referred me to an oncologist. After being diagnosed in December of 2019, I have undergone a stem cell transplant under the care of Dr. Todd Bauer, Oncologist and Dr. jesus Berdeja, Stem Cell Transplant Leader. The stem cell transplant occurred in March of 2021, after delays of 1) bed availability due to COVID, and 2) an unexpected emergency surgery for spinal disk repair and follow-up physical therapy. My initial treatment was velcade, revlimid and dexamethasone. However, due to the adverse effects this had on me, I was switched to Darselex and dexamethasone. At this point, I am in complete remission. In addition to the aforementioned physicians, I Thank God and my wife Pat, my Caregiver, for bringing me through this phase of my life.

Robyn Osborn

acute myeloid leukemia coach since 2025

Hi! I was diagnosed with myeloma in June 2024, so I'm still relatively new to this myeloma game. I was diagnosed with MGUS in early 2020 and monitored for three years. By summer 2023, my MM specialist began to suspect Smoldering Myeloma, which was confirmed with a bone marrow biopsy in August 2023. At that time, he encouraged me to start MM treatment with DRVd, but I was reluctant because I had no symptoms and didn't have active MM, yet. I decided to get a second opinion, and that MM specialist recommended holding off on treatment until, and if, I developed active MM. By March 2024, I began to experience fatigue and shortness of breath, and in May 2024, a bone marrow biopsy confirmed that I now had active MM. On June 17, 2024, I started induction therapy on DRVd. About 4 cycles, my MM specialist decided I was not a good candidate for a SCT, so as a result, she had me complete 6 cycles of Induction therapy. In mid-November, I began experiencing peripheral neuropathy in my feet, which she attributed to the Velcade, so she stopped treatment. My kappa light chains and m-spike were within normal range, so she determined that I was ready to move on to maintenance. Those were the sweetest words I had heard in a while! In December 2024, I started on monthly Darzalex Faspro (Dara). Even though Revlimid is standard of care in maintenance, she decided against adding it back in due to the related side effects I had suffered during induction. So, for now, I am on maintenance with monthly Dara, with no noticeable side effects, I'm happy to add, and I also receive Zometa infusions every 3 months, which were started in July 2024. I am also happy to report that my kappa light-chains are still within normal range, and my M-Spike in April was zero!