Rodolfo Muller

multiple myeloma coach since 2024

I'm Rodolfo Muller. Recently, I changed my life of been a pediatrician Neonatologist to live with Multiple Myeloma since 10 months ago. During this time a have being meeting a lot of patients with my same condition and I try to help them with my experience but with medical evidence about this condition. In other topics I have been reading a lot information about nutrition and Cancer. The impact in the course of the Myeloma. This and others reasons are the fundamentals for apply to this coaching. Thanks Rodolfo Muller Boschetti

Charlotte Pineda

multiple myeloma coach since 2024

You are unique and so is your myeloma experience. While we have much to learn from each other; ultimately, only you can decide what’s best for you. As a Certified Professional Coach, I see myself as a partner who helps others create clarity and move forward as courageous self-advocates who make the best decisions for themselves. My vision is for each of us living with myeloma to live life to the fullest and on our own terms! In March 2023 I was hit with the news: “You have high-risk smoldering myeloma…It will likely progress to multiple myeloma within two years." Less than a year later, I learned that I had multiple myeloma. I started induction therapy which included Velcade (bortezomib), Darzalex (daratumumab), Revlimid (lenalidomide), and dexamethasone. Due to side effects, dexamethasone was reduced and then eliminated. Gratefully, I'm responding well to treatment at this time. To borrow a popular business term: myeloma means a life filled with volatility, uncertainty, complexity, and ambiguity (VUCA). Early on, I decided not just to survive–but to thrive. I take one day at a time and credit consistent meditation and exercise for helping me through each day. In addition to being a coach, I’m a meditation and breathwork teacher. I get so much satisfaction from helping others incorporate meditation and breathwork into their lives. I don’t attempt to force myself or others to “just be positive.” Instead, I focus on hope and optimism and work hard not to beat myself up for having bad days–and sometimes weeks. It’s all about resilience. As psychologist and TED speaker, Susan David said, “Hope and optimism are different from (false) positivity. They are future-oriented and earned by a willingness to work hard and problem-solve to create a better outcome…Your feelings are valid, important, and worthy of honoring with compassion, but they are not facts or directives that get to boss you around. You can show up to them with compassion, courage, and curiosity, and then make your own choices about how you move forward.” This is where hearing the stories of others on HealthTree Foundation has helped me, and I’m honored to give back and help others as a coach. It’s not easy; but with courage, hope, and optimism, I believe we can thrive! When I’m not coaching, you'll find me spending time with family, playing with my Jack Russell Terrier, meditating, practicing yoga, learning something new, or relaxing with a good book. I look forward to speaking with you!

Todd Kennedy

multiple myeloma coach since 2020

I believe that hope and action can lead to your long and healthy life with myeloma! I have been married for 35 years and have raised my two sons, built deep friendships, and loved life in Orange County, CA for over 25 years. Despite living a healthy O.C. lifestyle, on the day after Christmas 2017, I unexpectedly heard those dreaded words, “You have cancer”. Thanks to the world-class expertise and care of Dr. Amrita Krishnan at City of Hope, my multiple myeloma is thankfully now in remission and my family and I continue to life live to the fullest! I was diagnosed with active myeloma at age 53. My genetic profile includes translocation 11:14. I had a successful autologous stem cell transplant at City of Hope in July 2018. My treatment plan has included PIs, IMIDs, Darzalex, Venetoclax, steroids, IVIG and bone strengtheners. My doctor and I believe in maintenance therapy and periodic monitoring of minimal residual disease (MRD). In January 2020, I "retired" from a 30+ year in the pharmaceutical industry to "give back" by refocusing my time and talents towards coaching and advocating for myeloma patients. My wife, Diane, also "retired" to focus on serving as a Myeloma Coach. If you are a caregiver or patient and want to connect with Diane, feel free to reach out to her via the Myeloma Coach website. I believe that myeloma patients have justifiable reasons for abundant hope! We are blessed to benefit from rapidly advancing scientific breakthroughs that have led to new treatment options, precision diagnostics and supportive care. I respectfully suggest, however, that hope is not enough. As patients, we must take personal action to turn hope into reality. These key action steps include: becoming informed on the basics of myeloma and your specific case; including a true myeloma specialist on your team; getting connected to the myeloma community; and actively participating in the ongoing development of your personalized, dynamic, comprehensive treatment plan. When I was diagnosed in 2017, I was overwhelmed on many levels. I was relieved, however, to discover that the myeloma community of patients, caregivers, and supporters is very tight. We support one another. We give back in appreciation of the love and support we have received. To get connected, know that HealthTree and the Myeloma Coach program are here for you! Wishing you silver linings, wonderful blessings, excellent health, deep love and great joy along your journey!