For more information and tools to help you become a knowledgeable and empowered patient create a HealthTree account at https://healthtree.org/

From there you have access to many tools:

• CureHub: Where you can upload and track your lab results and progress, find a Myeloma Specialist, share information on side effects, find your “Twin” with a similar experience, provide anonymous help to researchers, and find information on clinical trials you may be eligible for, among other issues.
• HealthTree University: Where you can view video lessons from Myeloma experts on a myriad of topics from Myeloma basics, treatments, medications, side effects, financial considerations, caregiver issues, and self-care. 
• HTU Stem Cell Transplant Unit specifically 
• Myeloma Coach: Where you can request assistance from a peer patient or caregiver with experience or expertise in specific areas.
• ✔  Join the HealthTree Stem Cell Transplant Chapter

External Resources

To learn more about multiple myeloma and stem cell transplant, visit:

• Be The Match https://bethematch.org
• Leukemia & Lymphoma Society (LLS) https://www.lls.org/
• Spark Cures https://sparkcures.com/
• Cancer Support Community https://www.cancersupportcommunity.org/

Wigs, Hair Coverings and Cold Caps

Resources for wigs and head coverings:

TLC Direct https://www.tlcdirect.org

Coils to Locs http://coilstolocs.com/

Headcovers Unlimited https://www.headcovers.com/headwear/

 

Resources on Cold Caps: 

Chemo Cold Caps | Cold Cap Therapy

 

Going Bald During Treatment

Post Transplant Diet 

Adapted from the following sources:

United States Department of Agriculture (USDA) Food Safety and Inspection Service

Memorial Sloan Kettering Cancer Center

HealthTree University 

 

Survivorship Resources 

Survivorship resources and websites Post-transplant networks

Blood and Marrow Transplant Information Network 

Be the Match 

Bone Marrow Transplant Forum, BMT-TALK: To subscribe to the mailing list, send an email with "Subscribe BMT-TALK" in the message body along with your first and last name to: listserv@listserv.acor.org

Patients Cancer Survivors Network: emotional support for transplant

Center for International Blood & Marrow Transplant Research

Help with post-transplant medication costs Patient Access Network Foundation 

Fertility

Resolve support group for infertile couples

Insurance

American Cancer Society Health Insurance

National organizations

National Bone Marrow Transplant 

National Cancer Institute
Search "Facing Forward: Life After Cancer" 

​​National Marrow Donor Program Search "Post-Transplant Care" 

National LGBT Cancer Network
American Cancer Society
National Coalition for Cancer Survivorship 

Men's health

Men's Health Network

Skin care

Skin Cancer 

Sun Safety
Search "Sun Safety" 

Sun Precautions Clothing
phone number 1-800-882-7860

Women's health

North American Menopause Society 

National Women's Health Network 

Young Adult

Livestrong 

 

Returning to Work 

Cancer and Careers
Compass Oncology
Job Accommodation Network Chemo Brain
Ticket to Work

Cancer. (n.d.). Job Accommodation Network. Retrieved May 4, 2021

Cancer and Careers | The Top Resource for Working People with Cancer. (2021, May 9). Cancer and Careers

Kleutghen, P. (2021, May 21). Chemo Brain for the Multiple Myeloma Patient. HealthTree.

Returning to Work. (n.d.). Compass Oncology. Retrieved May 3, 2021

Work, T. to. (n.d.). Timely Progress Review (TPR). Ticket to Work - Social Security. 

Cancer Advocacy

Employment Rights Cancer and the Americans with Disabilities Act 

Fair Employment for Cancer Patients and Survivors 

 

Mind and Body Resources 

How Happiness Boosts the Immune System | Scientific American