The Reality of Financial Toxicity in ASCT
Cancer is difficult enough—the financial burden can make it even harder. Many ASCT patients face unexpected expenses due to insurance changes or out-of-pocket costs.
Diahanna Vallentine, the author of this section shares, “My husband was diagnosed with multiple myeloma and had an ASCT. We thought we did everything right—called insurance, got approvals—but after his transplant, we found out his insurance dropped coverage for his ASCT center. We had to appeal multiple times and pay thousands out-of-pocket for medications. The stress impacted his recovery.”
How to Avoid Financial Hardship
- Talk to your doctor about all costs, including indirect expenses like travel, lodging, and childcare.
- Seek a second opinion on financial planning, even if you think you're prepared.
- Work with a Myeloma financial coach to navigate:
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Insurance appeals
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SSDI & disability benefits
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Medicare & ACA plans
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Financial aid resources
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Many patients don’t realize resources exist until they’ve already paid tens of thousands of dollars. Be proactive financially today.