Many people wonder if they can still receive CAR T-cell therapy without a full-time caregiver. The good news is that there are solutions, and not having a caregiver does not automatically disqualify you from treatment.

Talk to your care team early

Let your CAR-T team know if you don’t have a caregiver available. A social worker or nurse navigator can help you find solutions, such as:

• A team of rotating caregivers who each help for part of the time
• Community volunteers or support groups who assist with caregiving tasks
• Professional caregivers for hire, either privately or through hospital partnerships

Consider inpatient care for the first phase

Some treatment centers may offer the option to stay in the hospital for the first 1-2 weeks after CAR T-cell infusion. This is when the risk of side effects like cytokine release syndrome is highest. Hospital staff monitor for these issues, reducing the need for a full-time home caregiver during this period.

Explore financial and logistical support

Financial supportive resources may provide help with caregiving costs, transportation, or lodging. Ask your care team to connect you with these resources. You can also view a list of these resources in our CAR-T Financial Support section. 

Use creative caregiving options

Support can come from friends, neighbors, or hired help. Caregiving can be shared between multiple people. Telehealth appointments may also reduce the number of trips needed to the medical center.

Don’t rule out CAR-T because of caregiving concerns

Most patients can find a solution to meet the caregiving needs of CAR T-cell therapy. If you are interested in this treatment but don’t have a caregiver, talk to your care team about your options.