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Four Steps For Newly Diagnosed Patients
If you were recently diagnosed with multiple myeloma, you may be wondering what’s next. Understanding your diagnosis and planning your care can feel overwhelming. At HealthTree, we want you to know that you are not alone.
HealthTree provides resources and community for the millions of people living with leukemia, lymphoma, myeloma, and myeloproliferative neoplasms (MPNs) in the United States and worldwide.
On this page, learn what steps to take after your multiple myeloma diagnosis and how HealthTree can help you understand your disease, navigate your care, join a community, and find a cure.
Step One: Gather information.
At HealthTree, we believe that information is empowering. After a multiple myeloma diagnosis, your first step is learning about the diagnosis to make informed care decisions. This can ease anxiety and help you feel more prepared during appointments.
HealthTree’s educational services include:
Find a myeloma specialist. Studies have shown that being treated by a specialist can improve health outcomes for people with multiple myeloma. Before your first appointment, download the First Appointment Checklist. This checklist will help you know what to ask your health care team, including the tests you need to confirm the type of myeloma you have and help guide treatment.
Attend a live session or listen to past recordings of webinars with myeloma experts and survivors. HealthTree’s educational webinars cover topics ranging from the latest research to mindfulness and wellness to support group conversations.
Read the latest in myeloma news. HealthTree News covers the most recent myeloma research, explaining the results and what they mean for you. We also feature patient stories, basic information about blood cancer, and more.
Learn through HealthTree University. Learn from hundreds of expert-led lectures in dozens of video courses that make myeloma basics easier to understand. These videos follow a guided curriculum that helps you understand the basics of myeloma, treatment options, side effects and symptoms, and more. Then you can use clinic time to ask the important, personalized questions.
Step Two: Find your community.
You are not alone. More than 36,000 people in the United States are diagnosed with myeloma each year. It can feel confusing and isolating, but HealthTree can help connect you with others who understand. Community brings comfort.
Find a HealthTree Coach. HealthTree’s Coach program connects you with a trained peer who has been through what you are experiencing. They can help reduce anxiety, share experiences, and walk alongside you. You can also volunteer as a Coach to mentor others.
Join one of HealthTree’s Communities, online and in person. Participate in podcasts, roundtables, social media groups, and live events, or volunteer with a regional Cure Team where patients and caregivers learn and support one another.
Step Three: Take control of your health.
When you can take control of your health, you feel more empowered. HealthTree provides a personalized health dashboard to give you the clarity and tools you need to manage your care.
Track your labs. Keep bloodwork and genetic reports in one place, with visual graphs to share for a second opinion.
See treatment options. Access a personalized list of FDA-approved therapies and open clinical trials.
Find your myeloma “twin.” Learn from others with a similar disease profile and see what has worked for them.
Discover side effect solutions. Explore what has helped other patients manage symptoms and share your own tips.
Step Four: Advance cures together.
Your experience can make a difference in research. By sharing information with HealthTree, you can become a champion for a cure and help accelerate breakthrough discoveries. HealthTree’s By sharing your data, you fuel discoveries that can benefit you and other people with blood cancer. Your data will always remain anonymous, secure, and entirely under your control.
Connect your medical records. By sharing your data, you fuel discoveries that can benefit you and other people with blood cancer. When you connect your records, you can participate in studies by top blood cancer researchers. Approved researchers can turn your lived experience into insights that drive faster, more effective cures.
Answer survey questions and participate in real-world research. HealthTree Surveys and research help us understand your experiences. By answering survey questions and participating in studies, you contribute to blood cancer research that can improve care for people worldwide.
Together, we can shorten the path to cures and improve life for everyone facing blood cancer.
Read HealthTree Research Articles
Stay in touch with HealthTree! Be sure to subscribe to our newsletter or reach out to support@healthtree.org for additional help. We're here for you!
Best Wishes,
Jenny Ahlstrom, Founder of the HealthTree Foundation
Four Steps For Newly Diagnosed Patients
If you were recently diagnosed with multiple myeloma, you may be wondering what’s next. Understanding your diagnosis and planning your care can feel overwhelming. At HealthTree, we want you to know that you are not alone.
HealthTree provides resources and community for the millions of people living with leukemia, lymphoma, myeloma, and myeloproliferative neoplasms (MPNs) in the United States and worldwide.
On this page, learn what steps to take after your multiple myeloma diagnosis and how HealthTree can help you understand your disease, navigate your care, join a community, and find a cure.
Step One: Gather information.
At HealthTree, we believe that information is empowering. After a multiple myeloma diagnosis, your first step is learning about the diagnosis to make informed care decisions. This can ease anxiety and help you feel more prepared during appointments.
HealthTree’s educational services include:
Find a myeloma specialist. Studies have shown that being treated by a specialist can improve health outcomes for people with multiple myeloma. Before your first appointment, download the First Appointment Checklist. This checklist will help you know what to ask your health care team, including the tests you need to confirm the type of myeloma you have and help guide treatment.
Attend a live session or listen to past recordings of webinars with myeloma experts and survivors. HealthTree’s educational webinars cover topics ranging from the latest research to mindfulness and wellness to support group conversations.
Read the latest in myeloma news. HealthTree News covers the most recent myeloma research, explaining the results and what they mean for you. We also feature patient stories, basic information about blood cancer, and more.
Learn through HealthTree University. Learn from hundreds of expert-led lectures in dozens of video courses that make myeloma basics easier to understand. These videos follow a guided curriculum that helps you understand the basics of myeloma, treatment options, side effects and symptoms, and more. Then you can use clinic time to ask the important, personalized questions.
Step Two: Find your community.
You are not alone. More than 36,000 people in the United States are diagnosed with myeloma each year. It can feel confusing and isolating, but HealthTree can help connect you with others who understand. Community brings comfort.
Find a HealthTree Coach. HealthTree’s Coach program connects you with a trained peer who has been through what you are experiencing. They can help reduce anxiety, share experiences, and walk alongside you. You can also volunteer as a Coach to mentor others.
Join one of HealthTree’s Communities, online and in person. Participate in podcasts, roundtables, social media groups, and live events, or volunteer with a regional Cure Team where patients and caregivers learn and support one another.
Step Three: Take control of your health.
When you can take control of your health, you feel more empowered. HealthTree provides a personalized health dashboard to give you the clarity and tools you need to manage your care.
Track your labs. Keep bloodwork and genetic reports in one place, with visual graphs to share for a second opinion.
See treatment options. Access a personalized list of FDA-approved therapies and open clinical trials.
Find your myeloma “twin.” Learn from others with a similar disease profile and see what has worked for them.
Discover side effect solutions. Explore what has helped other patients manage symptoms and share your own tips.
Step Four: Advance cures together.
Your experience can make a difference in research. By sharing information with HealthTree, you can become a champion for a cure and help accelerate breakthrough discoveries. HealthTree’s By sharing your data, you fuel discoveries that can benefit you and other people with blood cancer. Your data will always remain anonymous, secure, and entirely under your control.
Connect your medical records. By sharing your data, you fuel discoveries that can benefit you and other people with blood cancer. When you connect your records, you can participate in studies by top blood cancer researchers. Approved researchers can turn your lived experience into insights that drive faster, more effective cures.
Answer survey questions and participate in real-world research. HealthTree Surveys and research help us understand your experiences. By answering survey questions and participating in studies, you contribute to blood cancer research that can improve care for people worldwide.
Together, we can shorten the path to cures and improve life for everyone facing blood cancer.
Read HealthTree Research Articles
Stay in touch with HealthTree! Be sure to subscribe to our newsletter or reach out to support@healthtree.org for additional help. We're here for you!
Best Wishes,
Jenny Ahlstrom, Founder of the HealthTree Foundation
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