Real World Myeloma Research with Adeel Khan, MD, UT Southwestern

Real World Data is a new form of data that shows what patients are experiencing in normal clinical practice (outside of clinical trials). It can be a valuable source of reference for investigators to answer a host of questions that clinical trials are either not capable of answering or are too expensive to run. 

Adeel Khan, MD, from the UT Southwestern Harold C. Simmons Cancer Center sits down with HealthTree to discuss the center's broad myeloma research program and its focus on improving patient outcomes.

Doctor Khan is mostly focused on myeloma epidemiology (the average risk of getting multiple myeloma), and he is working with the HealthTree Cure Hub Registry to study the real impact of myeloma on patients' daily lives.

The Impact of Myeloma on Your Sexual Health

Dr. Khan is partnering with HealthTree to study areas reported by patients that are problematic. One of these areas is sexual outcomes.

• Click HERE to watch a prerecorded event on “Maintaining And Communicating Your Sexual Wellness”. 

Real-World Data on Myeloma Natural History

According to Dr. Khan, real-world data is also of interest to researchers to analyze patient results during their journey from diagnosis to death. Read some examples of this type of research:

• Dynamic Frailty Status Could Provide Better Prediction Of Survival Probability
• What Is The Multiple Myeloma Survival Rate

Is There an Overuse of Proteasome Inhibitors?

Dr. Khan and the team recently presented new data on the real-world use of bortezomib compared to what was reported in clinical trials. The study indicates that once-weekly bortezomib is associated with similar efficacy and fewer toxicities compared to twice-weekly bortezomib. Therefore, the researchers suggest that once-weekly bortezomib should be considered as the standard-of-care regimen for newly diagnosed patients with multiple myeloma.

Find out more about this study here: Real-World Velcade Prescribing Patterns and Outcomes in Newly Diagnosed Multiple Myeloma.

Your Voice Matters in Research

If you want to participate in similar studies, take action today! By actively participating in research through the HealthTree Cure Hub, you contribute directly to developing new and improved treatments for myeloma. This benefits you and your fellow patients today and paves the way for a future with better outcomes for everyone diagnosed with multiple myeloma.

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