If you enjoy the very helpful Patient Power videos created by Andrew Schorr, you will appreciate their new Patient Empowerment Network. This new non-profit is designed to connect patients and caregivers with numerous healthcare resources - to help patients become more educated so they can receive better care. Our myeloma friends and helpful patient advocates Cindy Chmielewski and Jack Aiello are both involved in this new organization as board members. With their history of excellent patient advocacy in multiple myeloma, we would expect nothing less than a very helpful new resource for myeloma patients as well as patients with other types of cancers. The Patient Power site is a news resource; primarily videos that showcase medical specialists and patients in short interviews. If you haven't watched Patient Power videos, we recommend them to learn more about advances in myeloma from both patients and myeloma specialists. The new PEN site is a networking site that according to Jack "...partners with several other excellent websites so that patients can be knowledgeable through the journey of their illness." The Patient Empowerment Network will create and sponsor patient educational programs and materials. These events will be videotaped and shared on partner sites including Patient Power, Patient Power.eu, OncologyTube and others. From one who knows, Cindy says that "knowledge is empowering and the Patient Empowerment Network uses a network of people, foundations, organizations and medical institutions to help educate patients." Cindy notes, "Educated patients are more likely to ask questions and engage in discussions with their medical team about treatment options, goals of treatment, side effect management and quality of life issues." Watch for some new and upcoming programs like the one just held at City of Hope a few days ago. Find the new Patient Empowerment Network at www.powerfulpatients.org. About Andrew Schorr Andrew Schorr, an American and medical journalist living in Barcelona, has been in remission from CLL since 2001 after participating in a highly successful phase II clinical trial. In 2012 he was diagnosed with a second cancer, myelofibrosis, and leads a normal life thanks to a new, targeted oral therapy. Andrew, a co-founder of Healthtalk.com and PatientPower.info, has been a leader in patient education since 1984. He is passionate in his belief that online programs, produced with integrity, can bring the latest information to the most remote cancer patients to help them feel part of a community and to gain access to treatments that will greatly improve their cancer journey.
about the author
Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical research. Founder of HealthTree Foundation (formerly Myeloma Crowd).