We all want better and improved treatments to be discovered for multiple myeloma. But this won't happen on its own. We patients, caregivers and supporters must get involved in our own care and, yes, potential cure. But how to do that? Most of us aren't research scientists or doctors. Most of us probably didn't know what myeloma was until diagnosis. Here's a simple way. Support the Myeloma Crowd Research Initiative (MCRI). MCRI is a new approach to funding myeloma research. It combines the skill and knowledge of leading myeloma specialists with the patient perspective and supportive patient social communities to select and fund promising research projects in myeloma. The goal of the MCRI is to find and fund a cure for multiple myeloma. That’s no typo– we are looking for that imminent CURE. The MCRI needs funds to support the projects selected. In late July, we will be announcing which potentially curative projects were selected. Next, we in the myeloma community will raise the funds needed to move forward. Note that these projects are happening now and we will track their progress along the way. This is incredibly exciting. Summer Fundraising Ideas Summer is a fabulous time to do fun projects to raise money for this important cause. Consider getting your children, grandchildren or neighbor kids involved now that they are out of school and often bored. Here are ideas to get you started.
There are numerous ways to raise funds for this important effort. One myeloma survivor is getting married in the fall. They are requesting that in lieu of gifts, guests consider making a donation on the MCRI, which also has the added bonus of being tax deductible. Once funds are raised, simply go to the MCRI page (www.myelomacrowd.org/mcri) and click "make a donation." What else can you do to support MCRI’s effort to find a CURE for myeloma? You can set up your team page. It takes less than 10 minutes and costs zero dollars. To do so, simply go to Myeloma Crowd’s Home Page, look for the colorful box at the top that says Start A Team Today, click on it and follow the simple instructions. Or, click here. We will ask that you start promoting your team after the projects are announced, but starting a team before then will help ensure that the effort gets off to a successful launch. If you host a fundraiser as suggested above, you can also donate those funds as part of your team. There are great fundraising incentives! We want to hear from you! If you host a fundraiser, please share. We will feature photos and articles from our myeloma community supporters. To contact us, email email@example.com. Thank you for your support. Together, we can help find a cure for this disease. It won’t happen on its own and we patients and caregivers can be part of the answer.
about the author
Lizzy Smith was diagnosed with myeloma in 2012 at age 44. Within days, she left her job, ended her marriage, moved, and entered treatment. "To the extent I'm able, I want to prove that despite life's biggest challenges, it is possible to survive and come out stronger than ever," she says.
The Science and Art of Creating Your Personalized Myeloma Treatment Strategy with Dr. Murali Janakiram, City of Hope
Jun 13 / 18:00 PDT