- We received 36 high quality proposals for clinical trials for high-risk disease, and it was tough to cut them down to just 10. What this means is there is not a process or adequate funding in the current system to focus on the end game of cure for high-risk disease, which I believe is the cure for all myeloma. This is just so sad.
- Most of the 10 high quality proposals were either immune therapy, targeted therapy, or improving the patient's antibody response. These are curative therapies, but are not the kind of therapy which result in a pill or infusion that a drug company would find to be money maker. This means that they would not see the light of day if not for university research funding or a new funding method such as Crowd Funding. I would argue a great money maker is a drug that controls but does not cure myeloma, and one which has years and years of repeat customers. Nothing worse for profits than a treatment which requires just one use and cures. Drug companies currently spend billions to develop new drugs, so no profit means no spending.
- This process will only work if it is a grass roots process and is embraced by the patients, caregivers, families, and friends. Those who really have skin in the game, a person's life in the balance.
- Because of the complexity of myeloma, it requires targeted therapy, and this approach can and will be transferable to other cancers. Like David and Goliath, if you slay the most difficult and strongest cancer like myeloma, the rest will fall like dominoes.
I will be writing more about the MCRI initative in the future, because I do believe if patients make an effort to support this program they will HEAL THYSELF! And if it not successful we only have ourselves to blame. And oh, what a sad commentary that would be.