Understanding Stem Cell Transplant Patient Experiences in Multiple Myeloma

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Question

What are patient experiences related to autologous stem cell transplant? 

Description

This survey was designed by Myeloma Coaches and aims to better understand the patient experience during the stem cell transplant process. For example, were side effects different than expected, was the predicted recovery time accurate, what was the decision process to undergo a transplant, or why did patients decide not to undergo a transplant? This survey is dedicated to Myeloma Coach Susan Thaul, a myeloma patient, scientist, Myeloma Coach and epidemiologist (passed away May 2023), who was instrumental in its creation. 

Impact

Melphalan (used during stem cell transplant) is still the single most effective therapy in multiple myeloma and is still considered a standard of care therapy. This survey will inform patients who are considering stem cell transplant about other patient experiences, arming them with knowledge and peace of mind about the process.  

Type 

Survey

Time

3-5 minutes

Research Partners

Myeloma Coaches Vicki Jones, David Barton and Susan Thaul

Who Can Join

Multiple myeloma patients who have received an autologous stem cell transplant. 

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