HealthTree Logo
search more_vert
close
person Sign In / Create Account
Why Jim Lubinsky Uses HealthTree Cure Hub for Myeloma Research
Posted: Mar 21, 2024
Why Jim Lubinsky Uses HealthTree Cure Hub for Myeloma Research image

The following account was written by Jim Lubinsky, myeloma patient and HealthTree Coach. 

When HealthTree Cure Hub was first introduced six years ago, I started to enter my data into the system and suddenly realized that they were asking for some very detailed information about my health record.

I paused entering but soon after received the invitation to participate in an unveiling of HealthTree Cure Hub at our local library.

When I arrived, there were about 25 people in the room, along with Jenny and Paul [Ahlstrom] and some of their children. Jenny spent time talking about HealthTree Cure Hub and, in particular, why it was being built and how our information would be protected.

Jenny was truly sincere and had everyone's best interest in mind in setting up the HealthTree Cure Hub program.

At that point, we all sat there in the room and, with the help of the Ahlstrom family, began setting up accounts and entering our data into the system as we felt this was certainly a worthwhile program. 

I remember commenting to Jenny,

"I'm surprised how few people showed up for this unveiling and that the room should be filled with my myeloma patients because of what Jenny was working to accomplish".

Sometime later, I discovered that the Columbus, Ohio presentation was the first on a nationwide tour to introduce this groundbreaking database.  

I believe there are now 13,000 patients participating today, and the database is now moving to the size where researchers will begin using the data to find patterns and characteristics that will help us as patients receive more effective treatments.

Since these early days, HealthTree Cure Hub has made substantial leaps forward and can now be set up to automatically load your data from your provider's website.

Because most providers participate in EPIC, also known as MyChart, or one of the other major medical database systems, HealthTree Cure Hub can interface with those systems and retrieve our data automatically. All you need to do is set up an account and authorize the retrieval of data.

Yes, this database has grown to the size that researchers will be inclined to use it for the benefit of all of us patients. I highly recommend you join HealthTree Cure Hub today.

Join HealthTree Cure Hub

The author Audrey Burton-Bethke

about the author
Audrey Burton-Bethke

Audrey is the Editor for the HealthTree Foundation for Multiple Myeloma. She originally joined the HealthTree Foundation in 2020 as the Myeloma Community Program Director. While not knowing much about myeloma initially, she worked hard to educate herself, empathize and learn from others' experiences. She loves this job. Audrey is passionate about serving others, loves learning, and enjoys iced chais from Dutch Bros. She also loves spending time with her supportive husband and energetic three-year-old. 

Get the latest thought leadership on Multiple Myeloma delivered straight to your inbox.

Subscribe to the weekly "HealthTree Community for Multiple Myeloma Newsletter" for Multiple Myeloma news, life with Multiple Myeloma stories, Multiple Myeloma clinical trials, Multiple Myeloma 101 articles and events with Multiple Myeloma experts.

Thanks to our HealthTree Community for Multiple Myeloma Sponsors:

Johnson and Johnson
Sanofi
GSK
Regeneron
Bristol Myers Squibb

Follow Us

facebook instagram linkedin tiktok youtube