If you have Multiple Myeloma you may fatigue easily. There may be a need to prioritize activities in your day, or as one of my patients says, “Save my mojo”. In rehabilitation, we discuss ways to increase your energy levels slowly over time and how to conserve energy. We manage fatigue by reorganizing your environment in a more efficient manner to streamline tasks.
For example, consider your job. Pace yourself with more difficult tasks during your peak energy times, which for many people, is earlier in the day. Organize your work schedule to alternate physical activity with desk work to give yourself pace and rest breaks. At your workspace, place frequently used items closer to you to minimize reaching, bending, and lifting. Consider using an earpiece so you don’t have to hold up the phone for long periods of time.
These same principles will help you at home. For example, when making dinner. there are levels of ease. The easiest is a service like Meals on Wheels delivered daily, the next level is occasional take-in, a meal delivery service subscription, or pre-packed foods from a grocery or restaurant. If you like cooking simple healthy meals at home that is a great option that can save money. With a well-organized pantry and refrigerator that has frequently used items on a shelf where you don’t have to bend, reach, or lift. A few simple changes can make a difference such as:
There are common assist devices available like a stool, handle extensions, and reachers. Good posture and position will decrease energy expenditure. Lightweight shoes, like running shoes, are supportive and won't weigh you down when walking. There is so much more detail available at St Joseph’s Healthcare- they offer a booklet at this link. University of California San Francisco also has a nice handout that offers additional tips. You can find that here.
Doing less physical work can require a bit more mental work for preparation up front, but will save you energy in the long run. After a while. your home will be streamlined for efficiency. Keep in mind some general concepts:
Beth volunteers her time and shares her personal experience and understanding of living with myeloma as a Myeloma Coach. She helps others by sharing what she has learned and the resources that have helped her. If you are living with or caring for someone with myeloma and looking for ways to give back, consider becoming a Myeloma Coach. Coaches are asked to volunteer up to eight hours a month for one year. Initial and ongoing training and support are provided.
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about the author
Beth is a Licensed Physical Therapist that truly believes exercise is the best medicine but not the only medicine. Mother of two, a myeloma patient and advocate with a love of learning, healthy lifestyles and food adventures.