“I became a Myeloma Coach after meeting many patients who did not have a peer mentor to ask questions and find relevant information about myeloma.”

Danielle Spann was diagnosed with multiple myeloma in December of 2011 when she was 46 years old. Over a two-year period, Danielle experienced pain in her lower back and hip area, which she thought was due to a herniated disc. When she began having pain in her lower leg, Danielle, who was a gym enthusiast, thought she had a torn ligament. Subsequent tests led to a diagnosis of multiple myeloma and a tumor on her fibula that would need surgery. “I was confused,” said Danielle. “Nothing made sense.” It was just two days before her scheduled surgery that Danielle was referred to the multiple myeloma specialist who would become her primary healthcare provider. “He and his team had such confidence, it made me feel at ease,” said Danielle. “They assured me that they knew how to treat my condition.” Danielle had no knowledge of multiple myeloma when she was diagnosed. After reading some research material provided by her doctor, Danielle decided to participate in a clinical trial that included an autologous stem cell transplant (ASCT). “Once I understood that the ASCT could produce the best results for me, I didn’t question that strategy,” said Danielle. Danielle had two ASCT’s – in August and November of 2012 at Emory Hospital in Atlanta, Georgia as an in-patient. Her greatest challenge was nausea. “I lost 30 pounds in my first stay alone,” said Danielle. At one point she also developed a bacterial infection and all visitors had to wear gowns, masks, and gloves, as did Danielle when she went for her daily walks. Danielle’s mother was her primary support person at the hospital and even supported Danielle and her husband once she went home. Her family continues to keep her motivated. “From my husband to my mom and dad to my sisters and nieces, they are always there for me as a source of inspiration,” said Danielle. She says she is happiest when her entire family is together. It was about two and a half months following her second ASCT before Danielle felt good again. She still has some bone pain, so she tries not to overextend herself. After a busy career as an office manager, Danielle finds that today she is better suited to work from home as a travel agent. As an added bonus, she has more free time to create in the kitchen, much to the delight of her husband and two sons. She has also started scrapbooking. Of her decision to become a Multiple Myeloma Journey Partner, Danielle said, “I wanted to belong to a group that made me feel I was not alone. If I can help just one person, my purpose will be fulfilled.”