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New Treatment/Salvage Therapy for PCL (Newly Diagnosed + Veteran PCL)
New Treatment/Salvage Therapy for PCL (Newly Diagnosed + Veteran PCL) image
Plasma Cell Leukemia Chapter
event Sep 14, 2021 / 02:00PM - 03:00PM EDT

Event Description

Veteran PCL Patient, Paul Kleutghen, shares with us more information about new front-line therapy treatment for newly diagnosed PCL as well as salvage therapy for those that might be experiencing a relapse. Let's educate ourselves together about treatment options for this incredibly rare disease. 

Schedule & Agenda

person
Introduction
02:00PM
Audrey Burton-Bethke
Audrey welcomes everyone, introduces our featured speaker, and shares the event agenda.
person
Presentation
02:05PM
Paul Kleutghen
Paul shares information about new front-line therapy treatment for newly diagnosed PCL and salvage therapy for those who may be experiencing a relapse.
person
Q & A
02:35PM
Audience
Paul answers the audience's questions about the presentation and related topics.

Speakers & Moderators

The panelist Paul Kleutghen
Paul Kleutghen

I am a patient diagnosed in 2014 with primary plasma cell leukemia (pPCL), a rare and aggressive variant of multiple myeloma and have been very fortunate to find treatment at the division of Cellular Therapy at the Duke University Cancer Institute. My wife, Vicki, and I have two adult children and a grandson who is the ‘light of my life’. Successful treatment has allowed Vicki and I to do what we love best : traveling the world, albeit it with some extra precautions to keep infections away. My career in the pharmaceutical industry has given me insights that I am currently putting to use as an advocate to lower drug pricing, especially prices for anti-cancer drugs and, very specifically, CAR-T therapies, with recent contributions posted by Health affairs, the Institute for Clinical and Economic Review and the Centers for Medicare and Medicaid Services.

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The panelist Audrey Burton-Bethke
Audrey Burton-Bethke

Audrey joined the HealthTree Foundation as the Myeloma Community Program Director in 2020. While not knowing much about myeloma at the start, she has since worked hard to educate herself, empathize and learn from others' experiences. She loves this job. Audrey is passionate about serving others, loves learning, and enjoys a nice mug of hot chocolate no matter the weather.

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