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Getting to Know Others Living With PCL
Getting to Know Others Living With PCL image
Plasma Cell Leukemia Community
event Jan 13, 2022 / 01:00PM - 02:00PM EST

Event Description

Whether you are a plasma cell leukemia patient, family member, or friend, join us on January 13th for a meet and greet virtual event. Leader and veteran PCL patient, Paul Kleutghen will share his story. Feel free to share your story with others and connect with those who burden the same journey as you- we can find joy and support together. We look forward to connecting with you!

Schedule & Agenda

person
Host Introductions
01:00PM
Audrey Burton-Bethke
Audrey introduces the agenda of the event and featured speaker Paul Kleutghen.
person
Meet and Greet Intros
01:05PM
Audience
Share your story with others and connect with those who burden the same journey as you!
person
Resources Shared
01:25PM
Paul Kleutghen
Paul shares his story of living with PCL as well as some resources that he has found helpful. 

Speakers & Moderators

The panelist Paul Kleutghen
Paul Kleutghen

I am a patient diagnosed in 2014 with primary plasma cell leukemia (pPCL), a rare and aggressive variant of multiple myeloma and have been very fortunate to find treatment at the division of Cellular Therapy at the Duke University Cancer Institute. My wife, Vicki, and I have two adult children and a grandson who is the ‘light of my life’. Successful treatment has allowed Vicki and I to do what we love best : traveling the world, albeit it with some extra precautions to keep infections away. My career in the pharmaceutical industry has given me insights that I am currently putting to use as an advocate to lower drug pricing, especially prices for anti-cancer drugs and, very specifically, CAR-T therapies, with recent contributions posted by Health affairs, the Institute for Clinical and Economic Review and the Centers for Medicare and Medicaid Services.

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The panelist Audrey Burton-Bethke
Audrey Burton-Bethke

Audrey joined the HealthTree Foundation as the Myeloma Community Program Director in 2020. While not knowing much about myeloma at the start, she has since worked hard to educate herself, empathize and learn from others' experiences. She loves this job. Audrey is passionate about serving others, loves learning, and enjoys a nice mug of hot chocolate no matter the weather.

Read Bio

Have Any Questions?

Thank you for your interest in the event. If you have any questions, we would love to help!

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1-800-709-1113

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