To the person awaiting ASCT Ihaf my ASCT in 2009, so this Mar not be timely. I was also very physically active. I did slot of walking while I was inpatient at COH. I made a point of eating small amounts of food throughout the day. I was inpatient for 16 days, and got home and continued to walk Got back on my bike 30 days out and pack to the gym (weight-lifting) as soon as my team allowed me around folks. I wasn't fatigued ever. I didn't relapse until 2014 ( 4 1/2 after my ASCT) All I can say is dx'd 2008 and still here in 2023. Denise H

Hi all! I wanted to show you some really interesting data that just came out about a potential CAR T cell therapy treatment. It's the first one that has been proven to treat amyloidosis successfully! https://healthtree.org/myeloma/community/articles/outpatient-cart-treatment

For those who don't know me, I am the Financial Program Manager at Health Tree. I present financial webinars the first Tuesday every other month as well as Financial Articles monthly. I am also the Lead financial Coach. So if you need help finding financial assistance for co-pays. deductibles, travel costs assistance, utilities or urgent needs, finding RX expenses assistance etc. Or if you have questions about health insurance, including appeals, understanding your insurance, Social Security Disability, applying and appealing, understanding FMLA and ADA, or anything else financial, I would be glad to assist you. Our goal is to give you the financial tools necessary to help you stay on track in your financial life and not experience financial toxicity. Reach out to the Coach site and request a financial coach. We are always glad to help

My husband recently went through CAR T therapy (Carvykti). He is about 4 months post-infusion. He spent 21 days in the hospital with some CRS and HLH. Since being released he experiences severe muscle pain. His strength is not nearly what it was and experiences mild full body muscle pain during the day and at night some targeted intense muscle pain in his shoulders. It doesn't seem to be improving. He is also pretty foggy in the head in the mornings and night with very limited emotions. Anyone else with similar experience? Wondering if it will subside with time or if further treatment necessary?

Hello Everyone, Please review your Medicare coverage. Also be aware of a trend for some providers to stop taking Medicare Advantage Plans.

I am 56 years old and have had Multiple Myeloma for almost 12 years. I have a few lytic lesions and have Osteopenia. I have been doing weight bearing exercises (Planet Fitness) regularly and eating relatively healthy. I also take Vitamin D along with a daily multivitamin. In an effort to be proactive, I have asked my oncologist for ways to increase my bone strength and he has recommended bisphosphonates and I am scheduled to have Zometa infusions. If you have had Zometa Infusions, what has your experience been and would you recommend them?

Has anyone have any experience with Turkey Tail mushrooms? Specifically PSK (polysaccharide krestin) supplements? I know there is no research for this with multiple myeloma, but it has been shown to work extremely well for breast cancers.

I am on Velcade injections, and I am experiencing skin rash after each injection. The severity varies depending on the nurse’s technique. Some are better at this than others. I have been using hydrocortisone topical cream for the first few days after when area is inflamed, then recently I started using primrose oil after the inflammation is gone , to sooth the skin and help with healing. Any other suggestions to help the rash areas to fade?

I am 61 1/2 years old. I was diagnosed at the end of March, 2023. I am getting ready for the ASCT at the end of October. As everyone here knows, this is very anxiety provoking time for me. I have just finished 6 cycles of DRVD induction therapy which worked very well. I am still at the very good partial response, but my M spike is very low (0.1) with K/L ratio at normal range. I am about to undergo 24 hours urine test and my second BMB. Hoping for good results. I have always been very active. I do a lot of hiking almost daily (5 miles + ), as well as interval training, free weights and kettlebells workouts, yoga and Pilates. I am really worried about loosing my conditioning during ASCT process. I know many things can go wrong that leave you fatigued and unable to get out of bed. I really hope I can at least walk a bit. I will be an impatient at a BMT unit for 2 1/2 to 3 weeks. The unit has small gym. Can someone with the similar pre ASCT physical conditioning share their experience?