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Speeding Up the Research Process Using Real-World Data
Posted: May 06, 2024
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Clinical trials are an excellent way to collect data for CLL treatments and to get new therapies approved by the FDA. However, they are also long and costly. 

Why Does Clinical Trial Data Take So Long To Collect?

Thankfully, patients are doing so well on therapies that progression-free survival and other primary endpoint data often take several years, even a decade or more, to collect. 

Additionally, the clinical trial process understandably requires time to fund, set up, be approved, enroll a sufficient number of patients, conduct the trial, and manage the complications, delays, and potential red tape that can come along the way. This can mean that from the time an investigator has a research idea to the time the clinical trial actually starts, it could be a matter of years. 

All of this time means millions of dollars are required to fund and support these trials. This often makes it unrealistic for a researcher to conduct an independent clinical trial rather than one that pharmaceutical companies fund. 

How Can Real-World Data Speed Up Research? 

Real-world studies allow data to be collected quickly and efficiently. What is taking years to collect in the clinical setting can take a mere matter of months.

HealthTree Research Hub will allow rapid real-world data requests to be granted to blood cancer researchers to support meaningful and quicker studies. 

How?

  1. There is no time or cost in enrolling patients. Researchers are able to access a validated set of anonymized patient records that provide important information to answer their research requests.  
  2. Studies can be done retrospectively because the data researchers look for already exists. There is no need to wait for progression-free survival to be met.        

Blood cancer patients can't afford to wait years or decades to get better and personalized treatments that can improve their quality of life. Real-world data studies through HealthTree Research Hub can accelerate necessary investigations and surveys to significantly improve patient care and lead to better treatments and cures for each and every patient. 

Hear how blood cancer specialist, Dr. Irene Ghobrial, feels about HealthTree's research initiatives here: 

How Can You Help? 

Participate in CLL research as or on behalf of a CLL patient by completing one of the following: 

  1. Connect your medical records to our database in HealthTree Cure Hub today. It's quick and easy, and you can share your records with confidence that your personal information will be kept private. All information shared with researchers is anonymized. We value your privacy and your security. 
  2. Stay tuned to our News Website. Our goal this month is to help you be aware of research opportunities. We will publish articles regularly with action steps on how to participate and allow others to do the same. 
  3. Participate in surveys and studies within HealthTree Cure Hub. This can take 3-5 minutes of your time and influence the way healthcare providers treat CLL patients. Join HealthTree Cure Hub and start participating today.
  4. Share this article with those in your CLL circle! The more people know about and participate in real-world data research, the closer we are to better outcomes for CLL patients! 
The author Audrey Burton-Bethke

about the author
Audrey Burton-Bethke

Audrey is an editor for the HealthTree Foundation. She originally joined the HealthTree Foundation in 2020 as the Myeloma Community Program Director. While not knowing much about myeloma initially, she worked hard to educate herself, empathize, and learn from others' experiences. She loves this job. Audrey is passionate about serving others, loves learning, and enjoys iced chais from Dutch Bros. She also loves spending time with her supportive husband and energetic three-year-old. 

Thanks to our HealthTree Community for Chronic Lymphocytic Leukemia Sponsors:

Abbvie
Genentech

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