CLL Financial Resources

People with CLL and their loved ones are encouraged to meet with a financial counselor at the facility where they are being treated. Each hospital will have its own financial counselor within each specific clinic (like the leukemia or lymphoma clinic). The counselor will help determine coverage and estimate out-of-pocket costs. There may be restrictions on treatment options covered by Medicare and Medicaid. After you have met with the counselor, the resources below can help bridge financial gaps.

Blood cancer advocate and financial planner Diahanna Valentine helped compile this list of helpful financial resources. To contact Diahanna for professional assistance, please email her at diahanna@healthtree.org. Click here to watch a webinar recording in which Diahanna gave additional insight regarding financial tips for people with CLL. 

Pharmaceutical Company Patient Assistance Programs

• Genentech/AbbVie (1-888-941-3331) (venetoclax [Venclexta], obinutuzumab [Gazyva], rituximab [Rituxan])
  • Genentech Patient Foundation
• BeiGene (1-833-234-4363) (zanubrutinib [Brukinsa])
  • MyBeiGene Support Program
• AstraZeneca (800-292-6363) (acalabrutinib [Calquence])
  • AZ&Me Prescription Savings Program 
• Pharmacyclics (888-968-7743) (ibrutinib [Imbruvica])
  • Imbruvica Copay Card
  • Johnson & Johnson Patient Assistance Foundation
• Eli Lilly (1-833-727-4589) (pirtobrutinib [Jaypirca])
  • Jaypirca Co-pay Savings Program
• Bristol Myers Squibb (1-888-805-4555 Press 2 then option 3 for patient support programs) (CAR T-cell therapy liso-cel [Breyanzi])
  • Access BMS's Cell Therapy 360 program by clicking here where you may receive:
    • Transportation, lodging, and meal assistance financial support throughout your treatment journey
    • Copay assistance to cover out-of-pocket expenses

Medication Assistance Tools

• RxAssist - This is a comprehensive database of patient assistance programs. Enter your CLL medication to see patient assistance programs and discount programs
• Medication Assistance Tool - This is a search engine designed to help patients, caregivers and healthcare providers learn more about the resources available through the various biopharmaceutical industry programs

Additional Financial Patient Assistance Programs

• CancerCare - covers treatment-related costs such as transportation, home care, and child care for those in New York City, New Jersey, or Connecticut
• Grants for Single Mothers - directory of grants for single mothers to help with rent, utility bills, child care, education, medication, housing, and medical bills
• The Leukemia & Lymphoma Society’s Patient Financial Assistant Programs - Patient Aid Program- a one-time $100 stipend, Urgent Need Program- $500 grant for non-medical expenses
• Family Reach Foundation Financial Treatment Program - financial education, financial coaching, emergency relief  
• American Kidney Fund - covers the cost of insurance premium payments and expenses not covered by insurance for those with kidney disease
• Cancer Warrior - medical bill assistance  
• Bone Marrow & Cancer Foundation Lifeline Fund - covers cost sassociated with transplant (not common for CLL patients to have transplants, but in the case they do)
• Conquer Magazine Patient Resource Guide: A comprehensive guide for CLL financial support

Government Assistance

• Benefits.gov
• Centers for Medicare & Medicaid Services
• Eligibility.com (Medicare Resources)
• Legal Services Corporation
• Social Security Administration
• Social Security Disability Resource Center
• U.S. Department of Veterans Affairs
• Fisher House Foundation
• Veterans Airlift Command

Housing During Treatment

• American Cancer Society's Hope Lodges
• Healthcare Hospitality Network Inc
• Hospitality Homes - Boston, Massachusetts area
• Joe’s House
• Ronald McDonald House Charities

Legal Issues

• American Bar Association
• Cancer and Careers
• Disability Rights Legal Center
• LawHelp.org
• National Coalition for Cancer Survivorship
• Triage Cancer

Prescription Expenses

• Leukemia and Lymphoma Society Copay Assistance Program
• CancerCare Co-Pay Assistance Foundation
• Needy Meds
• Patient Access Network Foundation
• RxHope

Travel Assistance

Air transportation:

• Angel Flight
• The Air Care Alliance
• Air Charity Network
• Corporate Angel Network
• Lifeline Pilots

Ground transportation:

• American Cancer Society's Road to Recovery Program
• LLS Susan Lang Pay-It-Forward Patient Travel Assistance Program

Both air and ground transportation:

• The National Children's Cancer Society Transportation Assistance Fund
• Mercy Medical Angels

Other Helpful Resources

• National Cancer Institute Support Services Database
• Stupid Cancer Insurance and Finance Webinar
• COVID-19 Resources
• Caregiver Support - for all cancers