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AlanP
Multiple Myeloma Discussion • May 27, 2025
Confusing Results: M-Spike but Negative BMB?
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I am MM patient since 2020. After 4 lines of therapy I had CAR-T in July 2023. A few months back I had labs every month, Jan, Feb and March. That was 3 sets of labs at Mayo and another set at Moffit. All 4 sets of labs reflected a M-Spike of .3. While not high, my MM doc did state that I was definitely slowly relapsing. Same was stated by the Moffit doc. On 7 April I had a BMB and additional set of labs both of which came back negative for active disease. No good explanation from my doc. Does anyone have an opine as to how that could happen?
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Gerii2002
Multiple Myeloma Discussion • May 26, 2025
Seeking Clarity on Conflicting Results
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I was told in 2018, I was sick for several years running fevers. Finally they did a bone biopsey an the conclusion was MM. LAST MONTH I WENT TO 3 oncologist And one GP, an all had different results. I am beside myself. I don't have many good days my legs an arms are scared. I was at 911, I had my first cancer, that was stage 4, of anel cancer just like Farrah farccett,the mistake was leaving me, saying it's a rectal tear it cost me 12 years of my life! That's why I keep looking for help.
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Lisa713
Lymphoma Discussion • May 23, 2025
Diet & Immuno Questions During Watch & Wait?
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Diagnosed 1 year ago, follicular lymphona, stage 4, grade 2. My oncologist recommends a 'watch and wait' method as opposed to treatment right now. Is it ever recommended to do immunotherapy at this point? Can anyone recommend any dietary changes that can impact the progression? My oncologist said there is nothing I can do with my diet that will impact the growth.
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3sisterskaye
Multiple Myeloma Discussion • May 23, 2025
XVD Side Effects & CAR-T After Early Relapse?
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I relapsed from my sct within a year. My specialist is putting me on xpovio, valcade and dex to get me ready for car-t I was wondering if anyone had been on that regime and how bad were the side effects? The doctor said can make you very nauseous. They gave me meds to help with that. My other question was if anyone who relapsed so quickly after sct had a longer lasting response to car-t. Thank you.
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CarlyReba
Multiple Myeloma Discussion • May 23, 2025
Experiencing Double Gammopathy on Dara?
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My SERUM PROTEIN ELECTROPHORESIS labs for the first time indicate, “Double gammopathy with IgG Kappa paraprotein”. I never saw this previously and have not yet had the opportunity to inquire about it with my MM Specialist. I am currently receiving Daratumumab injections, and take Pomalyst 21 days each month. I am wondering if anyone else has had this show up on their labs and what it may indicate? Thanks in advance.