HealthTree has been working in the blood cancer world since 2018. We are now moving to other cancer types, and we believe that while cancer is a word, it isn't your whole story. This is a community of fighters, survivors, and supporters dedicated to helping you navigate every step of this journey. Post and lean on our collective strength, share your victories (big or small), and let’s take this one day at a time, together.

any suggestions for pain management, my husband is on morphine right now but that doesn't always help completely...looking for suggestions

When I was first diagnosed with MM, I met with an Oncologist at my local cancer center and then through another article about best multiple myeloma doctors came across Dr. James Berenson in LA. I was able to get an appointment fairly quickly which maybe should have been a red flag. Anyway, I met with Dr. Berenson and decided to follow his protocol for treatment. The local oncologist when seeing the plan commented that he was recommending using a chemo agent doxorubicin that had been around a long time. I was also to get 40 mg of Dex twice a week and Velcade. The long and short of it is that it was not an effective treatment for me and once we backed off on the Dex due to the side effects, my myeloma numbers starting going the in the wrong direction telling me that the other medications weren’t doing much if anything. For me Dr. Berenson’s protocol was not effective and set my recovery back. In hindsight I wish I had listened to the other oncologist who was recommending a current standard of care protocol.