HealthTree 2.0 Pillar Three: A Powerful Patient Data Portal

In preparation for our exciting October 23rd HealthTree 2.0 Launch, we've recently highlighted both Pillar One and Pillar Two of the new and improved HealthTree 2.0 model on our website. 

These pillars, targeted to help educate and connect the MDS community, are essential as they build empowered, trusting relationships with communities that are then ready and willing to contribute toward a cure. 

Today, we focus on the third and final pillar that makes up the HealthTree 2.0 Model: a Powerful Patient Data Portal.

Our data patient portal, HealthTree Cure Hub, is designed to help patients and caregivers give back by connecting their medical data in a private, secure way. Researchers can analyze this anonymous data to come up with real-world solutions to complex MDS issues. 

Patients are also invited to participate in researcher-led studies and surveys to further key MDS research. 

The Purpose of a Powerful Patient Data Portal within HealthTree’s Model

HealthTree Cure Hub, though technically "one program" within the foundation, consists of many easy-to-use, everyday tools that help you navigate your MDS and, at the same time, accelerate an MDS cure. 

When you're first diagnosed, it's hard to trust the multitude of information that's coming at you. That's where Pillar One, as mentioned before, comes into play because it helps organize, personalize, and simplify your MDS education. Pillar Two allows educated patients to become connected with one another and their communities. Pillar Three, HealthTree Cure Hub, gives patients (and caregivers) a chance to give back.

How does HealthTree Cure Hub get us to an MDS cure? It facilitates research! Patients and MDS investigators have pressing health questions and we created Cure Hub to answer those critical medical questions today. Through HealthTree Cure Hub, we will run queries (studies and surveys) led by top MDS investigators.

Patients will have the chance to participate in these necessary studies and surveys, giving the researchers the ability to analyze the anonymized data to find the answers they are looking for. 

Because we will have the ability to access so many patients, we are able to cut recruiting time and money in half. Researchers have access to anonymized, validated data instead of spending a fortune in time and money trying to collect a patient data subset on their own. 

Doctors (oncologists and specialists alike) often complain they don’t have access to the patient’s complete health story, but Cure Hub allows doctors and patients to be on the same page about the patient’s health profile. Researchers believe a cure will come after understanding the full picture of the patient’s health history compared to others like them. 

HealthTree Programs within HealthTree Cure Hub

HealthTree Cure Hub consists of many patient-friendly tools that help you manage your myelodysplastic syndromes. 

Track Your MDS Labs 

In Cure Hub, you can track all your MDS labs in a single place, so you don’t have to create or maintain a separate spreadsheet.

Clinical Trial Finder (Coming Soon with Personalization!)

HealthTree Cure Hub can currently search through hundreds of open MDS clinical trials. Enhanced personalization is coming shortly to help you narrow the list down to only those clinical trials you are eligible to join.

MDS Twin Machine

As our MDS Cure Hub database grows, you wil be able to find and connect with patients who have similar experiences or genetics using our twin machine technology. 

Side Effect Solutions

You can also use our Side Effect feature where you can see hundreds of side effects and thousands of crowd-sourced solutions provided by patients. Learn from your peers to see what worked and what didn’t to manage the most common MDS side effects. 

Surveys and Studies (coming soon)

Soon you will be able to contribute your answers to critical questions MDS patients and researchers are asking today to help us drive faster to an MDS cure. In this section, you will soon find surveys and studies led by top MDS experts that you can participate in.

To participate in these amazing features and get the full advantage from them, make sure that you connect your medical records. This is a secure and private connection, and your personal data will never be sold/shared without being completely anonymized. 

If you need help accessing any of these features, or connecting your medical records, or have questions in general about our research portal, contact our Patient Experience Team. 

Invitation to Participate in the Future of Myelodysplastic Syndromes

At HealthTree we believe no one should have to face MDS alone. We encourage you to sign up for a HealthTree Cure Hub account to investigate all the tools and features provided to help you make the best MDS decisions possible.  

Sign up for HT Cure Hub!

You can learn about the new and improved HealthTree model, our goals, and how you can be involved in our upcoming HealthTree 2.0 event. Invite your friends & family and join us on October 23, 2023, to hear how you can get your best care and contribute to accelerating an MDS cure.  

Register for the HT 2.0 Event!