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Understanding Each Other's NonSecretory Myeloma Experience

Understanding Each Other's NonSecretory Myeloma Experience image

Understanding Each Other's NonSecretory Myeloma Experience

Webinar
event Nov 10, 2022 / 01:00PM - 02:00PM EST
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Event Description

The NonSecretory Community meets to discuss how we are doing, ask and answer each others questions, and enjoy quality virtual time together.

Come prepared to share- what good things happened to you this past month? What obstacles are you dealing with in your healthcare at the moment? Are you self-advocating or would you like advice from the community? How is your caregiver?

Schedule & Agenda

The panelist Vicki Jones
01:00 PM
Introductions
Vicki Jones

Vicki welcomes the community and introduces the agenda.

Event panelist Audience
01:05 PM
Group Discussion
Audience

Share your nonsecretory myeloma experience with us. We look forward to getting to know you.

Speakers & Moderators

The panelist Audrey Burton-Bethke
Audrey Burton-Bethke

Audrey joined the HealthTree Foundation as the Myeloma Community Program Director in 2020. While not knowing much about myeloma at the start, she has since worked hard to educate herself, empathize and learn from others' experiences. She loves this job. Audrey is passionate about serving others, loves learning, and enjoys a nice mug of hot chocolate no matter the weather.

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The panelist Vicki Jones
Vicki Jones

In the 20 years since her diagnosis Vicki has learned a lot about fighting myeloma. In her own words, "When I was diagnosed it felt like I was the only one in the world with this disease. After always having been a bit of a loner, suddenly I yearned for someone to talk to that understood what I was going through. Now I want to be that someone for other myeloma patients and caregivers". Vicki has been on just about every chemo regimen and has had a stem cell transplant. Every drug regimen has worked against her Myeloma but she has never been in complete remission. She recently became a nonsecretor and is learning to deal with this new diagnosis. "When I was diagnosed in 2004 it made me sad to think I would never know what it was like to grow old. Now when I look in the mirror and see all the wrinkles, I’m overjoyed!"

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Join the Conversation

This event is part of the Non-Secretory Myeloma group in HealthTree Connect, a social media platform for people with blood cancer. If you want to connect with other patients and caregivers and talk about this topic, join HealthTree Connect.

Have Any Questions?

Thank you for your interest in the event. If you have any questions, we would love to help!

Feel free to give us a call or send us a message below.

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Get In Touch With Us

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1-800-709-1113

email

Support@healthtree.org

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