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Gaps in Myeloma Education: A Community Driven Discussion
Gaps in Myeloma Education: A Community Driven Discussion  image
Florida Myeloma Community
event Aug 22, 2023 / 06:30PM - 08:00PM EDT

Event Description

Often within the myeloma world, there are gaps in education that leave patients and caregivers alike feeling confused and frustrated. We gather as a myeloma community in this event to talk about the common misunderstandings or misinformation that's being spread in order to identify gap areas of education and clarify critical information for the community's understanding, overall well-being, and ultimate survival.

This event cannot be successful without your help. The Florida Myeloma Community is asking for myeloma patients and caregivers from across the world to participate in the following survey to identify the most common gaps.

Share the Gaps in Your Myeloma Education

Are there acronyms you just don't understand? Are you struggling to understand the difference between the myeloma medications? Are you frustrated with the conflicting nutrition advice that's given?

While we can't solve all of your concerns in one session, we do believe that identifying these educational gaps and solving what we can together can be a springboard to a myeloma cure for all.

Schedule & Agenda

The panelist Audrey Burton-Bethke
6:30 PM
Audrey Burton-Bethke

Audrey introduces herself and the panelists. She begins the discussion by explaining why we wanted have this specific session. 

Survey Summary
6:35 PM
Patricia Flores and Marilu Flores Najera

Paty and Marilu explain the most common "gaps" that were shared in the survey. They share answers to the top questions. Resources are going to provided to help answer common questions and concerns. 

Group Discussion
7:05 PM

The audience is free to share other myeloma gaps, questions, or concerns that they might have. Remember, the purpose of today won't be to necessarily answer all of the questions that you have, but identify where we can focus our education efforts this year and in the years to come. 

Speakers & Moderators

The panelist Audrey Burton-Bethke
Audrey Burton-Bethke

Audrey joined the HealthTree Foundation as the Myeloma Community Program Director in 2020. While not knowing much about myeloma at the start, she has since worked hard to educate herself, empathize and learn from others' experiences. She loves this job. Audrey is passionate about serving others, loves learning, and enjoys a nice mug of hot chocolate no matter the weather.

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The panelist Rozalynn Hite
Rozalynn Hite

Rozalynn Hite is the Patient Community Director and leads the HealthTree Coach program. She is also a myeloma caregiver to her husband Richard, and mother to three children. Rozalynn is passionate about providing support, education, and resources to help others live full and meaningful lives.

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The panelist Patricia Flores
Patricia Flores

Patricia is an International Medical Graduate who joined HealthTree in 2020 as part of the Patient Experience team. She helps patients understand and track their lab & genetic test results as well as relevant information from their health history. She loves ballet, traveling, and reading a good science fiction book as often as possible.

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The panelist Ana Sahagun
Ana Sahagun

Ana is an Engineer and a Psychotherapist, she has experience in both fields and loves them equally. She leads the Patient Experience Team at HealthTree and she’s passionate about talking to patients and empowering them. Whenever she’s not working you’ll find her exploring the world, eating different kinds of food, hiking or skiing.

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The panelist Valarie Traynham
Valarie Traynham

“I became a Myeloma Coach after meeting many patients who did not have a peer mentor to ask questions and find relevant information about myeloma.”

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The panelist Cynthia Chmielewski
Cynthia Chmielewski

Cynthia Chmielewski is a professional educator and myeloma advocate. As a former teacher, she now teaches myeloma patients how to advocate for themselves as the Director of HealthTree University.

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The panelist Marilú Nájera Flores
Marilú Nájera Flores

Marilú is an International Medical Graduate who recently joined HealthTree in 2022 as part of the Patient Experience team. She helps MGUS and SMM patients understand and track their lab & genetic test results and relevant information from their health history. She is a Disney fan, a travel enthusiast, a passionate novel reader, a cheerful, friendly person, and a good listener who enjoys spending time with family and friends.

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Have Any Questions?

Thank you for your interest in the event. If you have any questions, we would love to help!

Feel free to give us a call or send us a message below.


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