Hi everyone. I live in Fort Wayne IN. We have a new support group next meeting is Tuesday November 5. See link to our website. Feel free to attend in person if you’re in the area or virtual from anywhere https://www.myeloma.org/fort-wayne If you’re interested in the zoom meeting invite I can send this week Jim Fortwayne@imfsupport.org

Hi everyone. I live in Fort Wayne IN. We have a new support group next meeting is Tuesday November 5. See link to our website. Feel free to attend in person if you’re in the area or virtual from anywhere https://www.myeloma.org/fort-wayne If you’re interested in the zoom meeting invite I can send this week Jim Fortwayne@imfsupport.org

I just posted this but not sure which group i put it in..so here it goes again. I am taking teclistamab aka tecvayli. Since taking the abdomen injections I have developed a belly. I am wondering if it is caused by the injections or a change in metabolism. Has anyone else experienced this. I am not taking dexametasone..the usual culprit for a belly. Diet and exercise have not changed.

Hello, for those who have had autologous stem cell transplant, did you experience acne/pimples on your face and scalp after about a month and half? After about 50 days after my ASCT, my skin suddenly started breaking up and I'm now having itchy pimples on my forehead and scalp- something that I've never had before (even as a teenager, I never had acne/pimples during puberty, so this is really weird for me). Thank you for your feedback.

Started Lenalidomide for maintenance, does anyone know if achy joints and bones are a side effect of the medicine?

Anyone taking teclistamab...tecvaley with injections in the abdomen? I have gotten a large lower belly since tarting it and wondering if the injections are the cause. I am not taking dexamethasone...the usual culprit for a large belly. Anyone one else???

Is there anyone on this post that received treatment for AML at Memorial Sloan Kettering in New York? I realize there are several Sloan Kettering hospitals in New York. I have a care giver that would like to speak to someone who was treated for AML at Sloan Kettering in Brooklyn or was a care giver for a patient there. Thank you!

I am passing the following along from one of my coachees: I have a question or two for "On Oct 15th, I started feeling a cold coming on in less than 24 hours. I was admitted into the James Hops and put in isolation. The reason was I contracted the new COVID-19 strain. This is some powerful stuff and it will hit you hard in a short amount of time. My BP dropped as low as 80/50 and my temperature was as high as 102.5°. My hematology oncology doctors ran tests on top of tests, and based on the results, this was the new stronger COVID-19 strain that is running rampant, and it is hitting immunocompromised patients. So they started me on this IV-only medication called Remdesivir; normally it is a 5-round treatment, but since I responded so well after the 3rd round, they felt I did not require the remainder 2 rounds. Now I have been home under COVID house arrest till the 28th under self-monitoring. #1. As far as vaccines, I still need my flu vaccine, but since I had COVID-19, they were on the fence about that vaccine. Obviously, I’m getting the flu vaccine once I’m in the clear. #2. I don’t know about the COVID-19 vaccine yet. I went to the ASCO website to read up on it, and I’m starting to look into this document. Vaccination of Adults with Cancer ASCO Guideline. Kamboj M, et al. Patrick, I think the Health Tree Foundation group is well aware of the new COVID-19 strain. But I wanted to share my experience dealing with this nastiness. And to help other patients be aware of this experience. ASCO Guideline. Kamboj M, et al. Patrick, I think the Health Tree Foundation group is well aware of the new COVID-19 strain. But I wanted to share my experience dealing with this nastiness. And to help other patients be aware of this experience.

I have been on Revlimid maintenance for a year. I was recently informed that I have to change next year to the generic formula of Lenalidomide because my insurance will not cover Revlimid. Has anyone changed from Revlimid to its generic form. And did you notice any changes.

I was diagnosed in June 2023 and have received treatment since then.

Hello, I am new to this group.

Share your first treatment journey! we’d love to hear about your experiences What was your first treatment, and what was the outcome?

Share your first treatment journey! we’d love to hear about your experiences.

I have been under my employer insurance but in 2025 I am switching to Medicare. I had SCT in 2021 and have been on Revlimid for maintenance. I live in Ohio. If you live in Ohio and on Revlimid, what prescription plan do you find provides the best coverage for cancer drugs?

Has anyone found anything that actually works for Foot neuropathy?

Has anyone found anything that actually works for foot neuropathy.