Community post
Sharing My Choice to Forgo an SCT
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I am a IGG kappa patient , aged 69 , active , and pretty healthy other than MM I have t 11:14, and I am under the care of an amazing MM specialist in Toronto, Canada
Started induction in March this year, on DRD. I elected not to take V due to already having some foot neuropathy.
I had MGUS for nine years and SMM for 2 , so had plenty of time to read and learn and research.
Knowing my own body well , and my co - morbidities , I decided against having a SCT. There is no guarantee it will definitely give me a long or lasting remission, it’s not an easy process or recovery for many , and it does not mean I will survive longer , necessarily. My caregiver is my 71 year old husband , who , I know is finding this diagnosis difficult, and may not cope with a long recovery on my part , and who also has his own potentially serious health issues.
Even if you decide on a SCT , the chances are you will still stay on maintenance drugs , so what’s the point ? You also up your risk of secondary cancers with high dose Melphlan , even more than just on Rev alone. I start maintenance this month , and am so happy to have the Dex gone ! I generally feel well and manage my side - effects without much trouble , generally. Doses can always be reduced / changed etc
I believe new and improved treatments are fast emerging in myeloma , and there will be more options to keep us going down the line , hopefully. SCT, in the near future, May no longer be the standard of care for most.
All the above is just MY opinion , and of course your decision is very personal , taking all your own factors and your doctor’s recommendations into consideration- and your own gut feeling.
My best wishes , going forward, whatever you decide
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