My MGUS, diagnosed in 2017) progressed to high risk smoldering myeloma in early 2025. It has likely progressed to active myeloma or darn close according to my labs. My labs have been showing steady increases in IgG Kappa light chain ratio and it's at 238 now ( was 188 6 weeks prior) but my Calcium, Kidney function, and Hemoglobin have been normal. My latest hemoglobin dropped to 12.5 from 13.3 six weeks prior. So here's my question. I have felt in the past two weeks tingling in my toes and feet which has become more continuous now. I feel it more in my left foot rather than right foot. I have sent a note to my myeloma doctor at MSKCC earlier today. I am concerned that it may be amyloidosis but i also know it can come with myeloma. I will have a PET scan in 10 days and repeat blood work in a bit less than 4 weeks. My last MRI in mid July showed no lesions. If anyone with just Multiple Myeloma and Myeloma plus amyloidosis could weigh in as to whether this symptom raises a red flag of amyloidosis? I may be starting treatment sooner rather than later as per my doctor.

Has anyone had side effects after getting IVIG? I received it Friday and 36 hours later got a terrible headache, chills and body aches. If you did get some side effects what were they and what did you do to alleviate them? How long did the side effects last? I talked to my oncologist and he said to take Tylenol and if it does not improve to come to the ER at the cancer center.

I was considering moving out of state (CA to AZ) but just yesterday I realized employee ppo insurance plans are not the same as Medi-care advantage ppo plans. It seems I will not be able to keep my oncologist unless I pay out of pocket. Is there any way to move and keep my oncologist?

Out of curiosity, how many people also have thyroid issues

Hi. I will be admitted to hospital tomorrow Labor Day for Car T I am positive and focused on a good recovery. I will stay in hospital for at least first ten days. Any caregivers out here that can reassure my hubby of 54 years about his role when I come home. They stressed his looking for side effects so much that he is concerned. Any positive advice would be a great help. Thanks

Hello everyone, I am at the stage of early relapse for the first time after being in remission for five years. (hadVRD and SCT)... I like and respect my specialist very much so no concern there. We are testing to see if I quality for a CAR-T at this early stage. Has anyone had CAR-T at the first relapse and if so what is your experience?

Please define m spike?

My husband after one month of SCT transplant failed, know he is under Talvey, has anyone is under this treatment? And how long anyone is been on this treatment, any good results? And side affects? Thank you for your experience

Hello everyone! Unfortunately I caught a cold. I have a runny nose and cough. No fever yet. When should I inform my doctor?