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Janine
Multiple Myeloma Discussion • June 23, 2023
Transitioning Off Xgeva: Questions & Experiences
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I’m high risk IgA lambda non secretory MM and currently on maintenance treatment of DVRd after stem cell transplant in Sept, 2021. I also started Xgeva every month in March, 2021 until now. I also have osteoporosis. It is recommended to transition off Xgeva after being on it for 2 years and take Zometa for a month. If you have osteoporosis and transitioned off Xgeva, what med do you take for osteoporosis and how long have you remained on it? Frequency? Did your bone marrow biopsies change after being off of Xgeva? Sounds like Xgeva and dexamethasone also help fight the myeloma. What dosage and frequency for dexamethasone? Also know that Dex can cause bone thinning. Thanks!
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KimDeathMidwife
Multiple Myeloma Discussion • June 22, 2023
Creating Comfort for At-Home MM Hospice?
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Hello dear ones. I am trying to get some type of list of what would be needed for my person who wants to die in situ at home and has MM. There is limited hospice services available in her area so we will need to have a lot of this in place. Any lists beyond that of hospital bed, hoist, wheelchair, commode, walking aids, and medical equipment such as drip stand, oxygen, bathing, and feeding equipment... specific to MM.