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JaniceRenee
Multiple Myeloma Discussion • December 21, 2024
Sharing a Resource for Mobility and Motivation
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Hello, again. I hope this is ok. I want to share a resource with you. Most of us have physical issues that can make self care hard. But they also make it more of a necessity. Making the time and sustaining the motivation for self-care can be challenging, especially this time of year. I worked with Katie last summer. Her calm, genuine presence compelled me to show up. Once I did, she rocked my world and changed my life. She began by helping me walk again. She gave me hope, when I had none. Her sincere compassion and deep understanding of human physiology are only matched by her relentless dedication to helping others live their best lives. Whether you are an accomplished athlete and/or someone dealing with chronic pain and disability... Katie will meet you where you are and can take you where you want to go. Katie truly cares and will pull you to do all you can do, with her knowledge, wisdom and heart. And you can do all this remotely from the comfort of your own home. Her own story is pretty inspirational, too. Plus, she has great soundtracks. : ) Check out Krasinski Performance on Facebook or visit: https://www.katiekrasinski.com/ She welcomes your questions.
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JaniceRenee
Multiple Myeloma Discussion • December 21, 2024
Understanding IgG & Elevated Kappa/Lambda Ratio?
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Hello, friends. I'm grateful for this resource. I am 62 years old and was diagnosed with MGUS this past year. I'm one of the lucky ones. My numbers have been rising, but they are still in the benign realm. I don't yet understand the numbers, but with help, eventually I will. For now, I know I have IgG monoclonal gammopathy with an elevated Kappa/Lambda ratio. Does anyone else have this and/or do you know what it means? I'm going to discuss it with my doc next visit, but that's not for a couple months and I am curious now. Also, anyone in or near Northern Colorado? Gratefully, Janice Gratefully, Janice
Thumbnail for Boosting Infection Protection in Myeloma Patients with IvIG Therapy | Betsy O’Donnell,  MD | #ASH24
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Boosting Infection Protection in Myeloma Patients with IvIG Therapy | Betsy O’Donnell, MD | #ASH24

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Thumbnail for Combination of Isatuximab, Carfilzomib, Lenalidomide, Dex in Myeloma | Elizabeth O'Donnell | #ASH24
Playlist: ASH 2024

Combination of Isatuximab, Carfilzomib, Lenalidomide, Dex in Myeloma | Elizabeth O'Donnell | #ASH24

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Thumbnail for Ethnicity's Impact on Myeloma Outcomes After Stem Cell Transplant | Frances Cervoni, MD | #ASH24
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Ethnicity's Impact on Myeloma Outcomes After Stem Cell Transplant | Frances Cervoni, MD | #ASH24

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Thumbnail for Beating T-Cell Exhaustion: The Future of Myeloma Care | Marta Chesi , PhD & Erin Meermeier, PhD | #ASH24
Playlist: ASH 2024

Beating T-Cell Exhaustion: The Future of Myeloma Care | Marta Chesi , PhD & Erin Meermeier, PhD | #ASH24

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Thumbnail for New Myeloma Combinations Using CELMoD’s and Antibody Drug Conjugates | Paul Richardson, MD | #ASH24
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New Myeloma Combinations Using CELMoD’s and Antibody Drug Conjugates | Paul Richardson, MD | #ASH24

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Thumbnail for Updates from ASH-a-Palooza and Mentoring in Hematology/Oncology | Tax Kourelis, MD | #ASH24
Playlist: ASH 2024

Updates from ASH-a-Palooza and Mentoring in Hematology/Oncology | Tax Kourelis, MD | #ASH24

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Thumbnail for Teclistamab Step-Up Dosing to Prevent CRS in Relapse/Refractory MM | Jeffrey Matous, MD | #ASH24
Playlist: ASH 2024

Teclistamab Step-Up Dosing to Prevent CRS in Relapse/Refractory MM | Jeffrey Matous, MD | #ASH24

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Thumbnail for Bone Marrow Spatial Signatures Predict Outcomes in R/R Myeloma Patients | Yoshinobu Konishi, MD, PhD | #ASH24
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Bone Marrow Spatial Signatures Predict Outcomes in R/R Myeloma Patients | Yoshinobu Konishi, MD, PhD | #ASH24

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Thumbnail for Frailty’s Impact on Outcomes in Older MM Patients Treated with Bispecifics | Nadine Abdallah, MD| #ASH24
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Frailty’s Impact on Outcomes in Older MM Patients Treated with Bispecifics | Nadine Abdallah, MD| #ASH24

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Doug K.
Multiple Myeloma Discussion • December 19, 2024
Experiences With Teclistamab Side Effects?
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Hi folks. I've relapsed 28 months after Carvykti and my doctor is suggesting teclistamab. I'd like to hear from those of you who have been on teclistamab. What is the real story on side effects? Thanks very much, Doug
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patrick
Multiple Myeloma Discussion • December 19, 2024
Post-ASCT Strength & Balance: What To Expect?
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Dec 2024 Hi, folks; I'm a 68yo male, eight weeks post-autologous bone marrow transplant (ABMT) after a slumbering multiple myeloma (SMM) diagnosis in 2013, active multiple myeloma (MM) diagnosis in April 2024, radiation treatment of plasmacytoma and bone lesions in May/June; Zometa infusions through Aug to help with bone lesions. Velcade/Daratumamab/Revlamid/Dexamethasone in June/July/Aug; stem cell collection in Sept and transplant Oct 14. Five days later was hospitalized for gut infections, diverticulitis and typhlitis, for 8 days. Lots of diarrhea, some nausea but no vomiting, fatigue, peripheral neuropathy (showing up as occasional sharp pains, which wake me up a night, but mostly numbness of feet, inhibiting balance and movement) and loss of 25 pounds (about 13% of body mass), much of which seems to be muscle mass. Will likely restart Zometa for bones, daratumamab and revlamid for maintenance next month. Question: Have been improving slowly in movement/ leg strength/balance; thoughts on how much improvement I can expect?
Thumbnail for Understanding the ASH Research Collaborative- COSMIC Study | Saad Usmani, MD | #ASH24
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Understanding the ASH Research Collaborative- COSMIC Study | Saad Usmani, MD | #ASH24

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Thumbnail for Belantamab + Standard of Care for Newly Diagnosed Myeloma (DreaMM-9)  | Saad Usmani, MD | #ASH24
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Belantamab + Standard of Care for Newly Diagnosed Myeloma (DreaMM-9) | Saad Usmani, MD | #ASH24

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AP
Multiple Myeloma Discussion • December 18, 2024
Searching for a Bay Area SMM Support Group
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SMM support group. I am located in the SFO bay area. I am trying to check if there is a local SMM group where people can share the info openly and collaboratively participate in various health related activities such as exercise, diet planning etc.
Thumbnail for Social Determinants of Health Impact Myeloma FISH Testing | Amy Pierre, MSN, RN, ANP-BC | #ASH24
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Social Determinants of Health Impact Myeloma FISH Testing | Amy Pierre, MSN, RN, ANP-BC | #ASH24

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Thumbnail for Post-CAR-T Driving Restrictions after Week 4 In Myeloma Appear Unnecessary | Rahul Banerjee | #ASH24
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Post-CAR-T Driving Restrictions after Week 4 In Myeloma Appear Unnecessary | Rahul Banerjee | #ASH24

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Thumbnail for 24-hour Urine Testing Does Not Add Value to Myeloma Response Assessments | Rahul Banerjee | #ASH24
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24-hour Urine Testing Does Not Add Value to Myeloma Response Assessments | Rahul Banerjee | #ASH24

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Thumbnail for Plasmacytomas are More Genomically Complex than Myeloma in the Bone Marrow | Urvi Shah, MD | #ASH24
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Plasmacytomas are More Genomically Complex than Myeloma in the Bone Marrow | Urvi Shah, MD | #ASH24

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