As I look back on the past eight years supporting my husband since his diagnosis with myeloma I recognize the process we went through to get where we are today. At diagnosis we were terrified and completely unaware of myeloma.
As we became educated we sought out a second opinion and the best treatment options. Education and information gave us more peace and direction. We were soon eager to talk with and connect with other myeloma patients and caregivers to learn from them.
Those connections provided comfort and personalized support. We were then ready to give back and got involved in fundraising for a myeloma cure.
HealthTree recognizes this is a common path many myeloma patients and caregivers travel. We have created tools and programs for each phase of the myeloma journey.
The Purpose of Meaningful Patient-to-Patient Connections within HealthTree’s Model
At HealthTree we recognize the power of personal connection and have developed a suite of programs that offer meaningful patient-to-patient connections.
When myeloma patients and caregivers connect with others they find comfort in knowing they are not alone, are able to support one another, and share key resources. They enlarge their circle of influence and feel part of a community.
As patients are educated and connected with others they feel empowered and want to be involved in moving forward and helping find a CURE.
HealthTree Programs within Pillar Two: Meaningful Patient-to-Patient Connections
There are a variety of HealthTree programs and tools that provide meaningful connection.
The HealthTree MOVES app brings patients and caregivers together to participate in fitness challenges held throughout the year. Participants can find support, encouragement, and community as they share their progress in becoming more fit and healthy.
HealthTree MOVES is run by myeloma patient Michelle Peterson, who knows firsthand the impact health and fitness make on life with myeloma. She makes the effort to personally get to know participants and encourage and motivate them in their personal fitness journey.
HealthTree created its own social media tool to allow myeloma patients to find focused information.
Individuals can post questions, share resources and personal experiences with others in the myeloma community. This tool is thoughtfully run and moderated by multiple team members with moderation by myeloma patient Michelle Peterson and direction from myeloma caregiver Rozalynn Hite.
The HealthTree Coach program provides personalized one-on-one support from myeloma patients and caregivers to others. Coaches share their personal myeloma experience and valuable resources to help others.
Coaches find meaning in sharing their experiences, and Coachees feel supported and empowered by knowing they are not alone. The Coach program is led by myeloma caregiver Rozalynn Hite.
HealthTree Regional Community Program (coming soon in 2024)
HealthTree is preparing to extend our reach across the country by creating Regional Myeloma Communities. The goal of these communities is to reach all myeloma patients to support, educate, connect them with peers, and invite them to participate in myeloma research.
These Communities will be customized for the regional group based on the interests of the Community leads and members. They will provide opportunities for patients and caregivers to actively participate in sharing HealthTree resources with others.
Stay tuned for more details as we prepare to launch this program in early 2024.
Invitation to Participate in the Future of Myeloma
At HealthTree we believe no one should have to face myeloma alone. We encourage you to utilize the programs within Pillar Two to find connection, personalized support, and community. The next step is to become a part of the myeloma cure by participating in HealthTree Cure Hub's myeloma research.
You can learn about the new and improved HealthTree model, our goals, and how you can be involved in our upcoming HealthTree 2.0 event. Invite your friends & family and join us on October 23, 2023, to hear how you can get your best care and contribute to accelerating a myeloma cure.
Thanks to our event sponsors, Bristol Myers Squibb, Amgen and Genentech, for making this event possible.
about the author
Rozalynn Hite is the HealthTree Coach Director and wife of myeloma patient Richard Hite. Rozalynn is an occupational therapist and mother of three beautiful children. She is passionate about providing support, education, and resources to help others live full and active lives.