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azureAnemone
General Discussion • March 26
M-Spike % is rising
My M-Spike % a few months back began to rise from 0 beginning at: 2.7%, then 3.5, 4, 4.2, & currently at 5.3%. I'm on Dara once per month injection only. I immediately contacted my Doctor who advised me to continue thru my 6 month therapy regimen, & then meet in April. Is 5.3% considered alarmingly high? Also, how do you go about discussing changes in therapy? I've had a Stem Cell Transplant in 2021 that didn't reduce the cancer. Any advice would be greatly appreciated. Ken
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MPNULIMBO
Myeloproliferative Neoplasm Discussion • March 18
MPN-U Triple Negative CSF3R mutation
Hi there! Is anybody else out here that has MPN-U Triple Negative with a CSF3R mutation? I am a 60 year old female and I was diagnosed with this over the last 5 years and have been on Jakafi for 3 of those years. I have a great MPN specialist and GP, which I’m very grateful for because I know how hard it can be to find the right Doctor. Just wondering if you have a similar diagnosis. Are the co-morbidities progressing and still diminishing your QOL? I have IDA W/ low storage, Fybro, Chronic Inflammation, serious weight gain w/no explanation, bone and nerve degeneration, Ramsey-Hunt and osteoarthritis just to name a few. And my immunity is low. Yikes! Just looking for my tribe, lol.
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XimenaG • Admin
Myelofibrosis Discussion • March 12
Webinar: Nutrition Tips for Treatment & Recovery
🥗 Nutrition During Blood Cancer Treatment: Eating Well Through Treatment and Recovery Eating well during blood cancer treatment can be challenging. Changes in appetite, taste, and side effects can make daily meals difficult, but the right nutrition strategies can help support your strength and recovery. Join oncology dietitian Peter A. Adintori, MS, RD-AP, CSO, CDN, CNSC, for a practical webinar designed for patients and caregivers. You’ll learn: • How to build a flexible and sustainable eating pattern during treatment • Tips to manage appetite loss and taste changes • Food safety essentials for patients with weakened immune systems • Nutrition strategies to support recovery and long-term health 📅 March 19, 2026 ⏰ 2:30 – 3:30 PM EDT 💡 Can’t attend live? Register anyway, and we’ll send you the recording. Register here: https://healthtree.org/blood-cancer/community/events/mar26-nutrition-blood-cancer-treatment-recovery?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
Nutrition During Blood Cancer Treatment - HealthTree for Blood Cancer

Nutrition During Blood Cancer Treatment - HealthTree for Blood Cancer

Join oncology dietitian Peter A. Adintori, MS, RD-AP, CSO, CDN, CNSC, to talk about nutrition for blood cancer patients focused on practical strategies.

https://healthtree.org/blood-cancer/community/events/mar26-nutrition-blood-cancer-treatment-recovery?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general