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ChioOsuna
Myelofibrosis Discussion • April 21, 2025
Join the HealthTree Hike & Wellness Challenge
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A few spots are still open for the HealthTree Challenge: Hike & Wellness — a weekend that brings together movement, wellness, and support for blood cancer patients. Here’s what it’s about: Raise $1,500 for research, education, and patient support. Train with an optional 12-week plan to get ready for the hike. Join a team of people who care and want to make a difference. 📍 Where: Berkshires, MA 📅 When: October 23–25, 2025 Will you take on the challenge? Let’s do this! https://give.healthtree.org/event/healthtree-challenge-hike-and-wellness/e663485?c_src=socialmedia
HealthTree Challenge - Hike and Wellness

HealthTree Challenge - Hike and Wellness

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https://give.healthtree.org/event/healthtree-challenge-hike-and-wellness/e663485?c_src=socialmedia
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ChioOsuna
Myelofibrosis Discussion • April 15, 2025
New Physical Activity Study: Share Your Experience
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Share Your Exercise Experience - New Research Study Hi everyone, we wanted to let you know about an important new study looking at physical activity in blood cancer patients. Whether you're highly active or find it challenging to exercise, your experience is valuable to this research. About the Study: Quick 8-minute survey Led by Memorial Sloan Kettering Cancer Center & HealthTree Foundation Focuses on activity levels AND barriers to exercise All responses are confidential The results could help develop better support systems for patients struggling with physical activity during treatment and recovery. Who Can Participate: Age 18+ Diagnosed with blood cancer or precursor condition Any activity level is welcome https://healthtree.org/myeloma/curehub/private/research/YS80V1G0YXT0iL8q3gMT?utm_source=social+media&utm_medium=connect&utm_campaign=physicalactivitysurvey&utm_content=general Let's help researchers understand our community's real experiences with physical activity. Every response matters! Feel free to ask any questions below or contact support@healthtree.org.
HealthTree

HealthTree

https://healthtree.org/myeloma/curehub/private/research/YS80V1G0YXT0iL8q3gMT?utm_source=social+media&utm_medium=connect&utm_campaign=physicalactivitysurvey&utm_content=general
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Nerjalover
Myelofibrosis Discussion • April 14, 2025
New to MF, Considering a BMT at 68 - Seeking Advice
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Hi I have recently been diagnosed with MF after having ET for 27 years then P v for 1 year and now after a Bone Marrow Biopsy have been diagnosed with MF. It’s bad as I have 2 rogue genes and a weird chromosome which do not help the situation. I am on Ruxonitilib ( UK) (Jakafi) in States which I started a week ago. I take a gout drug daily and a preventative infection drug. So far I feel great! No bone pain and feel so much more energised. I’m 68 and live with my husband in a suburb of Liverpool in the UK. I am not sure about a bone marrow transplant- my oncologist who is the best MPN Specialist in the NW of the UK isn’t sure if I would survive it. However, he is going to put me forward to the team and let them decide. Any advice will be helpful and thanks for allowing me onto the group.
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SALVATORE
Myelofibrosis Discussion • April 4, 2025
Deciding on SCT: Nervous About Recovery
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Morning , hope all is well. I am new to this group. My name is Sal and I am 60 years old. I have had PV (for 8 years) that became Myelofibrosis stage 2 one year ago. My was spleen was 2600cc (very large) and now have got it down to 1300cc. I am on Ruxolitinib and a study pill (INCB057643). My doctors now want me to do a Stem Cell Transplant in July 2025. I am up and down what to do. I am in good shape but nervous that I won’t recover from the SCT. Anyone have any advice that can help me decide what to do in the future. It would be very appreciated. Thank You So Much and Have A Great Day.