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Gerald
Myelofibrosis Discussion • March 23, 2025
Navigating Surgery With MF: Experiences?
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I'm looking for people who have Myelofibrosis and have had any surgeries done. I have MF2 & have my estimated life expectancy is 3 years. I have a back problem where nerves are being compressed and causing my left leg to hurt like crazy when I'm on it for more than a few minutes. So far I've been able to get some relief from spinal ablation but it's not working like it used to. In the last 5 months my right hip has deteriorated to the point of extreme pain and needing a hip replacement. My Dr. tells me that I am at an extremely high risk of having a stroke or getting a blood clot if I have a surgery to correct either condition. My question is, has anyone on this board with MF had a surgery and how did it go?
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Gerald
Myelofibrosis Discussion • March 23, 2025
Considering Surgery With MF: Experiences?
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I'm looking for people who have Myelofibrosis and have had any surgeries done. I have MF2 & have my estimated life expectancy is 3 years. I have a back problem where nerves are being compressed and causing my left leg to hurt like crazy when I'm on it for more than a few minutes. So far I've been able to get some relief from spinal ablation but it's not working like it used to. In the last 5 months my right hip has deteriorated to the point of extreme pain and needing a hip replacement. My Dr. tells me that I am at an extremely high risk of having a stroke or getting a blood clot if I have a surgery to correct either condition. My question is, has anyone on this board with MF had a surgery and how did it go?
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Gerald
Myelofibrosis Discussion • March 6, 2025
Facing ASCT and a Hip Replacement?
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I am in need of a stem cell transplant but found out recently that I have a hip that needs to be replaced. I need a cane to walk and use a wheelchair if I'm traveling any distance. Does anyone know of someone who's had a ASCT in this condition?
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Iliana • Admin
Myelofibrosis Discussion • February 18, 2025
Find Your Local Support Team
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