What is the thoughts and recommendations about having a fresh Christmas tree in your house? My husband had his SCT on October 13th.

I started bridging therapy before CAT-T. Has anyone had vertigo while on pomolyst? What other side effects might I experience?

So I’ve completed my first cycle of Dara KRD and had blood work done this past Friday, same day when I had my fourth treatment (only Dara and Dex that visit). While my Kappa went down almost 50% my Lambda went down a full 50% so my ratio actually crept up by 18. Stands at 264. What have others experienced after first cycle? I do understand that treatment can kill both good and bad cells. I do have IGg Kappa to be clear. Was hoping to see a marked decrease in my ratio. My cytogenetics is considered standard (11;14 translocation).

Has anyone had a stem cell transplant who has multiple chemical sensitivity and/or electro sensitivity? If so, how did you tolerate the SCT?

Hi everyone, hope you are all doing well. I wanted to ask a few questions about monitoring while in PR or VGPR and would really appreciate your experiences. For those who are in PR or VGPR: 1️⃣ How often do you get your M-spike and free light chains checked when things are stable? Is it every cycle, or does the testing interval become less frequent over time? 2️⃣ Do your numbers sometimes fluctuate up and down from one test to the next? If yes, what kind of variation have your doctors told you is considered normal or not concerning? 3️⃣ At what point do you and your medical team feel a drug may be losing effectiveness? Is resistance concluded only after several rising results, or can it be identified quickly? I would be grateful to hear how others have experienced this part of the journey. Thank you so much for sharing.

Hi, I started on Elrantamab (T-Cell engager) in late June. It’s been really successful but since then I’ve had the Rhino Virus and Pseudomonas infection. Despite IV antibiotics (4 days as I was desperate to get home), I still have it. Has anyone else had this and had it cured? It’s really getting me down. Thanks 🙏🏽

Hello Everyone, Well, I check in next week for my transplant and I am a bit freaked out. The thought of the melphalan has me waking up in the middle night. I have faith in getting through this but I find myself getting more anxious by the day.

I am trying to get as much information as I can for my daughter who has been diagnosed with CEL and it has been advised she have a bone marrow transplant.

Anyone have a normal bone marrow post transplant (both morphology and flow) and normal light chains along with a persistent serum M spike (in my case unquantified due to migration to the beta region) and positive immunofixation (IFE)? This leaves me at VGPR despite negative marrow results. My questions: what happened in the long run; was your doctor dismissive, or not, of the persistent M spike and IFE results?

Hello. Do any of my myeloma friends have an AARP United Healthcare Advantage plan? (not Medigap or Supplement) How has it worked for you? (The time period has passed for me to get into a Medigap plan without underwriting).

Anyone taking venetoclax? I would love to hear how you responded, how quickly and hos you tolerated it. Thanks

Hello, I'm currently reviewing Med Supp and Plan D insurance options and would like opinions/feedback on which carrier(s) are easiest to work with - claim processing, customer service, overall best experience. My background: Diagnosed Oct 2023-Kappa Light Chain, ASCT May 2024, currently receiving Darzalex Faspro monthly and Lenalidomide 10mg 21/28. Medicare effective February 2026, female, no smoker, lives in IL - Will County. Thanks to all who respond!

I just started 1mg Pom on Halloween as my M-spike had crept up from 0.1 to 0.6 and we wanted to tap it back down. Light headaches, no nausea, light fatigue (nothing compared to higher doses of Rev). I had a massive case of Rav Rash followed by two weeks of traveling prickly patches that calmed with a cocktail of OTC antihistamines. However. The last week or so I've noticed two spots of skin on both hips that are really sensitive, sometimes painful, and not constant. Anyone else have sensitive splotches of skin?

Medicare Open enrollment for Part D comes to a close on Sunday, Dec. 7th. Make sure you go in and do some comparisons and make sure your meds will still be covered under your current plan. There have been a lot of changes for most if not all plans.

Does anyone hold daily maintenance dose of Lenalidomide when ill with a cold/flu per instructions from your specialist?