I've been diagnosed with MGUS for 2 years after routine bloodwork showed an M-spike. Recent bloodwork has me concerned. I see my Dr in 2 weeks to discuss the results but I'm looking for clarity before my appointment. My lambda light chains have always been rising, and usually Kappa Light chains are slightly elevated too. This round has my lamda rising even more, and Kappa within normal range. My ratio is now low .08. My Dr has always reassured me that I am low risk, but from what I know these numbers are going in the wrong direction. What questions should I have for my Dr?

We all give for a reason. Today, our HealthTree team is sharing theirs, a reminder that our mission is driven by compassion, commitment, and the strength of this community. Now we invite YOU to join us. Print the sign, write your reason, take a photo, and share your “I Give Because” message here on Connect. Your voice might inspire someone else to give, support, or simply feel less alone. Download your sign: https://healthtree.org/blood-cancer/community/why-i-give-campaign Together We Care. Together We Cure.

📘 My Myeloma Journey — A Hopeful Story of Healing and Remission My story with multiple myeloma began in late 2024, when a large thyroid mass and some unexplained symptoms led my doctors to look deeper. Tests revealed IgG Kappa multiple myeloma, and a bone marrow biopsy showed the cancer was active. It was frightening, but it also marked the beginning of a journey toward healing. I started treatment right away with a strong combination of medicines, including Darzalex. Those early months were challenging, but something very important happened: my body responded beautifully. Month by month, the numbers moved in the right direction. The mass shrank. The bone lesions stabilized. The cancer proteins dropped—fast. By the spring of 2025, my blood work showed no measurable M-protein, meaning the main marker of myeloma was essentially gone. Through the summer, scans continued to show improvement. Each appointment brought a bit more hope. Then came September 2025: my PET scan showed no evidence of active myeloma anywhere. It was the kind of news every patient hopes for. And in November 2025, I received one of the strongest signs of remission possible: my MRD (minimal residual disease) test came back below the limit of detection. In simple terms, they could barely find even a trace of myeloma cells—an outstanding response. Today, I am officially in deep remission. I continue on maintenance Darzalex to keep everything stable, and my doctors are very pleased with how well I’m doing. This has been a long road, but it is a story filled with progress, resilience, and God’s grace. My myeloma is quiet, controlled, and being held firmly in check.

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If you need some help understanding tests results diagnosis etc. ChatGPT app will help you understand better. It’s a good AI tool for Myeloma. Just share info etc and ai will explain. It will not give a diagnosis.

Well beginning on October 31 I began a new treatment plan for a mm relapse. My new plan is kyprolis, venetoclax, pomolyst and dex. I was also given two doses of cytoxan. I was having horrible neck pain and a strange headache. Once the treatment started the pain has stopped but when I just had my bloodwork done today my kappa light chains have increased from 33-78 instead of going down. I tried to get ahold of my doctor but it was close to the end of the day before Thanksgiving so no luck. Has anyone experienced this and it wasn’t that the treatment was a bust.

Black caregivers—especially Black women—are often expected to be superheroes. To handle everything. To never break. But that expectation isn't honor; it's a burden that can break your spirit and your health. The stats are sobering: Black caregivers experience higher rates of caregiver stress, yet we're less likely to seek help. We navigate racism in healthcare while advocating for our loved ones. We manage chronic conditions at higher rates while putting ourselves last. This National Caregiver Month, let's normalize: * Asking for help * Admitting when we're struggling * Accepting that vulnerability is a strength * Seeking culturally competent support You are not "less than" for needing support. You're human. And you deserve the same love and care you give so freely to others.

Because gratitude means everything… 💫 It’s time to say thank you. Take a moment to share this letter with your caregiver, the one who stands by you through it all. 💌 Screenshot it or share it so they can see this message. Let’s fill this space with appreciation for those who give their hearts every day. 💜

Four days after receiving Kyprolis infusion, I noticed blood in my urine. Went to hospital. Test results showed platelet count down to 11K (from 136k a week earlier), creatinine at 2.25 (1.1 a week earlier) and eGFR at 30 (71 a week earlier). LDH at 997 indicates tissue damage. Has anyone had tissue damage related to Kyprolis? If so, was the damage permanent or did your kidney function recover over time?

Hello all, This post may be repetitive for some of you as I erroneously posted in the general group 😊 My question to the non-secretory people is two part. How often are you doing your PET to monitor your MM. Are you alternating with MRI to avoid excess radiation? Thanks and Happy Thanksgiving!

Hello all, Just wondering how often you are doing your PET to monitor your MM given the nature of the nonsecretory condition. Are you altering PET and MRI to reduce amount of radiation? Thanks and Happy Thanksgiving!

I am currently on Revlimid, the brand name version, and I have been using the co-pay help from BMS (Bristol Myers Squibb) to pay for the portion that my ACA insurance doesn’t cover. Starting in 2026, my ACA insurance no longer covers brand name Revlimid, only the generic lenolidomide. I know about the co-pay help from Blood Cancers United (aka LLS), but I wonder if there are any other organizations that might provide co-pay help for the generic lenolidomide for someone on an ACA insurance. Any suggestions where to look? I know about Teva, but they only help if you are under 300% FPL, and I don’t qualify.

Trials evaluating the single-agent Isatuximab, a CD38 monoclonal antibody (MoAb), in patients with relapsed/refractory amyloid light-chain (AL) amyloidosis. https://ashpublications.org/blood/article/146/21/2495/548147/Isatuximab-surface-strike-deep-response-in-AL

Hello everyone! I just discovered this group a few days ago after getting the result s from a bone marrow biopsy. I have been encourage and enlightened from some of the posts that I seen here. I haven't had a chance to speak with my hematologist yet, but I hope to over the next few days. My test are concerning based on what I found on the internet results. Here's the results: IgH (14q32) Rearrangement Detected (Atypical) 1R1F 5’IGH deletion or rearrangement 44.0% 11.9%. Can someone one help me decipher what this means until I am able to speak with my doctor? Thanks in advance for any help.