Hello everyone, I am a newly diagnosed high-risk MM patient in Las Vegas (Age 38, Female). This is all happening very quickly, and I am quite afraid of the delays in scheduling appointments. I have been diagnosed with active, high-risk multiple myeloma (C90.00), confirmed by a bone marrow biopsy showing 70-80% involvement and the "triple-hit" high-risk genetics (del 17p, t(4;14), 1q gain). I have an expedited referral to see Dr. Aaron Goodman or Dr. Carolyn Mulroney at the Sarah Cannon Transplant and Cellular Therapy Program at MountainView Hospital in Las Vegas. I have a few questions for the group, especially anyone who lives in Las Vegas or has experience with Sarah Cannon: Has anyone here been treated by Dr. Goodman or Dr. Mulroney at Sarah Cannon in Las Vegas? What was your experience like? . Since I am high-risk, I worry this delay is too long. Has anyone successfully managed to get an urgent appointment with them faster? What should I do in the meantime to manage anxiety and prepare? (I am monitoring symptoms but have no CRAB symptoms yet.) Any advice for a "newbie" starting intensive treatment in the Las Vegas area? Thank you so much for any advice or support you can offer. I appreciate any guidance from those who have been through this. Best wishes,

I received my 90-day post CAR T results, and all results showed Zero cancer detected. I want to be happy, but my ClonoSeq shows a new sequence detected. My specialist couldn't give me an answer as to what this is. It reads as follows: New dominant sequence found. Significance unknown. The previous sequences tracked for the purpose of MRD determination were not detected. I feel very confused and not even sure what questions to ask. Any advice would be helpful. Thank you.

is anyone on the regime of dara faspro, & pomalyst (stopped Dex in April bc I had taken it for 5 yrs previously)

Has anyone heard of or tried manuka honey to help with neuropathy? I did not see any mention of it in the side-effect solutions. Thanks!

Hi everyone, I wanted to understand your experience with KRD/KPD treatment schedules. For those who were on carfilzomib, how long did you remain on the 3-times-per-cycle schedule before your doctor reduced it to 2 times per cycle? Was there a standard protocol followed in your case — for example, completing X cycles before shifting to a less intensive schedule, or did it depend on your PET-CT/M-protein/light chain response? Any insights into how your oncologist decided when to reduce the frequency would be very helpful.

I had Stem Cell . Bone marrow transplant at +35 day. My bones still hurt, how long will that go on?

Have said before they took it from my back bone, and that time they told me I had MM. I never got medicine, and I get checked every 3 months, still to this day. I need a doctor that deals with MM, I don't know where I stand. I can barely walk, pains in my back, legs stomach, there is no cure. This is a long story who can help me? This is my second cancer, I had anal cancer and when they found it it was a stage 4!!! Sounds wild , I know the pain I was in for at least 3 years, and one day I went to a knew dr. He too told me it's an anal tear, I walked out and went to 1 last dr. I knew his name but not how great he really was! The next morning my G.P called me in and he told me I have cancer, went to the hospital and they found it! Just like Farrah Facwett, I made it. I feel the same thing is happening now, I know from the pain , can someone help me please?

My last radiation dose was three weeks ago in my neck vertebrae, and I'm still experiencing fair pain, no taste, and some hair loss. In the beginning, swallowing was very painful, but that's okay now. I voluntarily stopped the Oxycontdine and narcotic skin patches because of brain fog which was frightening. But I'm past the worst of the physical pain now. Can other's give me an idea on how long the pain and zero taste will continue? Many thanks.

Hi, I'm Mary from Greensboro, N.C.. I'm in my fifth year of having myeloma, and early on learned about this wonderful organization. Whenever I meet someone who has myeloma, I ask them if they have heard about Health Tree, if they haven't I encourage them to check it out. In fact, I wish I had flyers I could hand out. I admire Jenny for the wonderful job she is doing in helping all myeloma patients with understanding and dealing with this disease. She is an amazing woman who is doing amazing things. And I'm so grateful for all she is doing to help us on our cancer journeys.