Hello, I'm a Myeloma patient hoping to undergo a stem cell transplant. I'm wondering if anyone has tried putting ice on their testicles during the stem cell transplant. I was told it could help prevent low testosterone problems? Thanks

The American Cancer Society estimates that over 40% of Americans will be diagnosed with cancer in our lifetime. Yet we still treat it in a very reactive way. We try to learn about our cancer, treatment options, navigating our broken healthcare system, trying to understand our VERY confusing health insurance, and so much more - AT THE WORST POSSIBLE TIME - right when we are diagnosed and having other thoughts clouding our mind like, "OH MY GOD I'M GOING TO DIE". Towards that end, we will be kicking off an initiative called "Educating Towards a Cancer Free Tomorrow where we bring this education BEFORE cancer strikes. The initiative seeks to bring cancer education to our high schools as part of their standard health curriculum. If have interest or think you can provide support, we'd love to hear from you. Mike MikeH@SoCPAnow.com

To say my results were amazing on the two Bispecific Antibody trials I was on would be an understatement. And the positive results are fantastic. LOOK INTO CLINICAL TRIALS for BISPECIFIC ANTIBODIES

Hi everyone! Asking if anyone has tried an ice cap both during the CDE pre-transplant collection process and the melphalan part. Anyone used it? Did it work?

Hi everyone! Asking if anyone has tried an ice cap both during the CDE pre-transplant collection process and the melphalan part. Anyone used it? Did it work?

Has anyone been on the combination of Daratumab +Talquetamab and had chills so bad you shook for an hour or two and couldn’t get warm?

I began my journey with a diagnosis of plasmacytoma in the paranasal sinuses on the right side. Once that diagnosis was completely confirmed with additional testing, I went on daily radiation treatments of those areas. A band above the eyes and a band below the eyes focused on the sinus areas. This lasted for 6 weeks, 30 radiation treatments in all. It worked, it eliminated the plasmacytoma. A few months later, I was then diagnosed with multiple myeloma. Some of those cancerous cells were apparently missed by the radiation and moved throughout my body. To make a long story shorter, I went on chemotherapy. At first it was (VRD) Velcade, Revlimid, Dexamethasone. Then later on, Zometa was added. I was on it for more than a year. The bottom line is, the radiation damaged both my gums and my teeth. I’m dealing with that today. I have some serious dental issues now and had nothing of this magnitude prior to these treatments. I’ve been off the Zometa (zoledronic acid) since February of last year. I’m working with a highly skilled oral surgeon and periodontist that is associated with the cancer center. He is dealing with gum, bone, and teeth issues. He is very concerned about my previous use of the bisphosphonate, Zometa. He said its impact on the bones can last for years. And it affects the jawbone specifically; creating an ONJ condition. So, to summarize; the radiation, the Zometa, and the multiple myeloma itself have had a major impact on my gums and my teeth. I’m now a regular at his office for various treatments to deal with my dental issues. And of course, multiple myeloma itself can have a negative effect on the bones along with the impact of the chemo drugs on those same tissues.

I had infusion of my Car T cell May 6th. I have lost my sense of taste and smell. Wondering if anyone has experienced this as a result of Car T or perhaps the lymph- depleting chemo that had prior to infusion caused it?