Is there a link to how to prepare your home when you get home from stem cell transplant. Also is there a link to the diet you are supposed to be on post transplant. I have information but I thought someone might have some other information to share. Thank u

I would like to know the success or not of using a cold cap for stem cell transplant.

I was wondering if anyone else is experiencing gum issues. I have had continuous problems with gum inflammation and infections since August 2021. Prior to this I always had outstanding dental appointments. My peridontist hesitates in doing any surgery that may help due to the fact I had Zometa for 2 years which I stopped in January 2018. He ran a CTX blood test which shows how well your bone turnover is. I was at 121 and a normal reading begins at 150. He is concerned with osteonecrosis. In my last visit, he says it is the myeloma causing the infections which doesn't make sense because I just had a CT/Pet in March 24 and it didn't show any bone involvement. Thank you in advance for your time.

Hello, I was diagnosed in September 2023 at age 37. Luckily my disease was caught a little early before my bone lesions metastasized, so I haven't broken any bones. However I did lose vision in my right eye due to blood vessels bursting from hyper viscosity (thick blood). For treatment, I have been on the four drug (dex, Dara, Velcade, revlimid) regiment for 7 cycles. At first my disease responded well and reduced my M-spike from 6.0 to now 0.26. however for the past two cycles, my disease has stopped responding (M-spike is stagnant and fluctuates up and down around 0.24 to 0.26). As a result, my doctor is switching me to a new drug called venetoclax (it is not FDA approved for Myeloma yet, but it is promising for patients with translocation 11;14, which I have). Has anyone used this drug for Myeloma before, and what side effects effects did you experience?

Hello all. I was diagnosed on March 20, 2024, and on April 24 underwent a spine surgery to stabilize the area around my T1 vertebra (or, where it used to be... the myeloma turned it into a puddle). I start chemotherapy on Wednesday. I have high risk, and just learned about my chromosomal abnormalities. Where can I learn more about what these names and numbers mean? +15 (CEP15):Trisomy of chromosome 15 (58/100) 1q21 (CKS1B): Gain of CKS1B locus (45/91) 14q32 (IGH): Positive for IGH translocation (92/100) t(11;14)(q13;q32)(IGH/CCND1): Positive (81/100)