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Struggling With Palliative Over Pain Meds?
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I know there must be many of us who have had chronic pain from other causes, coming into our myeloma diagnoses. After being diagnosed with stage 2 MM in early 2019, I've had no trouble with the palliative doctors taking over my pain regimen, and prescribing the low doses of Norco and a migraine med that I have needed since a high impact injury (plane crash) forty years ago. I use a minimal amount of these meds, as I've learned they quickly become counter-productive if you rely on them too much. Now, suddenly, my current palliative doctor is telling me that because I don't use much of the Norco, especially (she has expressed in the past that she wished I took more), she doesn't think any of my pain is from the cancer and that it's all from the plane crash. So she is now saying that she doesn't want to prescribe any pain medicine for me, that my PCP should do it. Well, my PCP doesn't want to, since I have a palliative doctor, of course. My pain and disability have increased immensely since my diagnosis, especially this past two years. She tells me that since I haven't gone up in usage, my pain must not be increasing. Is anyone else dealing with this problem? Or have any advice? The palliative doctor says I need to go to a pain clinic. I've been through the pain clinic process many times in the past 43 years, and am not well enough to have to be driven all over San Diego County to start all over in another one. The last time I went to one, it took eight months for me to get in. That was 14 years ago, when my husband was still alive. Now I am alone and because of my immune system and because of my conditions, do not drive into the city anymore. I really thought all this hassle for a low dose of pain medicine was behind me, with the diagnosis and a palliative team on board. The palliative doc even said that Revlimid doesn't cause any pain (!!) ...and that since my myeloma is stable (not in remission but plateaued) the increased disability and overall aching is not at all from the illness, so not her responsibility. I have an appointment with her tomorrow, through Telehealth. I dread seeing her anymore. Any help through anyone else's experience would be much appreciated.
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