In 2020 I was in a very dark place. Being diagnosed with MM and related renal failure the previous year, I put my hopes in a SCT to turn the tide. Unfortunately, it completely failed, plus I developed a pseudograph vs host disorder with a lot of suffering. Covid, because of my recent SCT, turned me into a hermit where I did not leave my house, except for medical visits, as I tried a series of traditional chemo therapies, with limited success. My prayers shifted from God save me, to God please end my life. It had been my dream to go to Europe to restore an old stone cottage in retirement. With all my dreams gone up in smoke, I decided to build an "old" stone cottage on our property, to build my strength, give me something to distract from my suffering and self-pity. I am not a builder but have done almost all the work myself. I am halfway through and will start the stonework this summer. Meanwhile, I started a monoclonal antibody two years ago, which put me into stringent remission, now for two years. The cottage saved my life, which I now call "The Healing Hut."

Someone posted...I am doing infrared therapy hyperbaric chamber. And also ozone and foot detox it has helped me tremendously. Can anyone please explain what these are, where to get them, how they work, how much do they cost, etc.? I have HRMM 1 q gain. Would these be good for me?

New study for Smoldering Myeloma patients! Dr. Shah from MSK is investigating whether a plant-based diet or supplements like probiotics, omega-3, and curcumin will improve microbiome composition. Complete a 15-minute survey to find out if you’re eligible to join: https://healthtree.org/myeloma/curehub/private/research/5jLN2I1z8ORyETSwrhNY?utm_source=social+media&utm_medium=connect&utm_campaign=nutrivention&utm_content=smoldering

I was recently diagnosed with mm in the beginning of the year as result of stage 5 kidney dysfunction. I started induction treatment of DVD. On my 4th cycle of treatment I was given my first shot of Xgeva. Few days later I notice pain in my left arm, not sure if it is bone pain or muscle pain. Has anyone experience this? My Dr. recommend adding cytoxin to my current treatment. I would like a feedback to cytoxin.

Being an Army person I like short and sweet. Also abbreviations kill me. I took Talvey for my multiple myeloma which didn’t work. Also has skin, taste and nail side effect. Unreal. So from my point of view I wouldn’t use it.

Hello All, Wondering if anyone has taken Dararumamab after relapsing and if so, what type of side effects did you experience and were you able to work? I’m 60 and was diagnosed in August 2017 with renal failure, anemia, and numerous lytic lesions. Achieved remission fairly quickly 🙏 after an agressive CyBorD regimen for 4 months, continued with Velcade and Ninlaro for another 15 months. I’ve been medication free since then. I continued with blood work every three months and for the past 20 months the Kappa Light Chains have slowly and steadily climbed upward and are now at 428. My hematologist/Myeloma specialist and I met yesterday and agreed to continue to monitor once a month and set parameters on the numbers he is most concerned with so that if/when the numbers reach or exceed the parameters, we will have a conversation about Daratumamab treatment. I am feeling good now without any symptoms besides a little fatigue.Thanks in advance!

Are there any activities (exercise, diet,activities) that I should be avoiding?

If you have read "Living Well with Cancer", I would love your opinion on it? TIA, Keith 3X Cancer Survivor

I am 72 years old and was diagnosed with Multiple Myeloma in October of 2022. I had an autologous stem cell transplant on May 10, 2023. Since the transplant, I have had ongoing night sweats (have to change 3 to 4 times every night). Doctors keep telling me it is not the Myeloma. I am wondering if anyone else has had problems with night sweats. If so, what can be done to stop them. Please, anyone, help!

For the many Healthtree members in the Carolinas area, especially the Charlotte area, we want to invite you to our LOCAL myeloma support group. We are online at MyelomaSupport.org We would love you to participate in our support group.

Good day. I was diagnosed with multiple myeloma in 2022. I am due for an autologous stem cell transplant. My doctor will be applying for incapacity leave, I just want to find out if 6 weeks will suffice for recovery and will I be able to go back to work after that. I am in South Africa by the way.

My father has been suffering from multiple myeloma for the past two years. His third immunotherapy, darzalex, is going on. He has become extremely weak now. He’s barely able to do his simply tasks like bathing etc Since darzalex started this weakness has taken another lower level. His bones are fragile and even a simple leg movement causes ligament wear and tear. He’s 79. He’s going through physiotherapy too. Right after the weekly treatment, his stomach gets upset sometimes and sometimes he just doesn’t feel like eating anything. Are these normal symptoms? Is there anything anyone can advise? It’s heartbreaking to watch him like this. The ongoing darzalex treatment is at the stage of finishing his 8th shots this Friday.

First of all, I want to start off saying I thank you Lord Jesus for your divine healing and the doctors and nurses and everyone who worked with me in my life it’s been six months since the CT transplant and I thank God God, I still have been doing Well I’m excited about the next chapter in my life. I don’t know what that entails. I go to the doctor once a month now to check on my blood and the rest of My blood counts. I started after care things like infrared therapy hyperbaric chamber. And also ozone and foot detox it has helped me tremendously Now it’s time for me to go to the dentist. We’ll see how that goes.