Does anyone have any experience with a new monoclonal antibody approved to prevent Covid-19? It is called Pemgarda.

Has anyone else had issues with Medicare not approving charges for the doctor who did a 3-D genetic analysis of the tissue from my bone marrow biopsy? Medicare also didn’t approve the same doctor’s evaluation of my blood smear. Any suggestions, coding issues?

Do U get blood transfusions often and if so where? I had to go to ER for mine. Also anyone been on ninlaro? side effects? Thanks

My name is Donna. I’m 54 and will turn 55 on June 15. I was diagnosed at 53 with high risk MM. I had my stem cell transplant in November 2023. I’m currently in remission. I hope to connect with other people like me.

Might the 40 mg of Dex taken weekly on injection day (Dara) be the reason for 1000 mg of sugar in urine sample given that very same day?

Does anyone have experience with loosing taste and smell after Car T (due to CRS reaction)? If so how long did it take for it to come back?

I'm new to this group and wonder if fatigue is a symptom for others?

Hi - I was diagnosed with Lambda Light Chain Myeloma in 2016 and have been on several therapies since and for the most part, have done very well. I have basically exhausted the less invasive options at this point and now it appears that my myeloma is becoming active again so my Dr. has suggested CAR T Cell Therapy with Carvykti. I am terrified of the possible neurological side effects, especially ones that cannot be reversed and I'm wondering how others have done on this therapy and if they have experienced the neurological side effects and if so, how were they treated, how long did they last or are they ongoing. Was it a difficult recovery? Did you need home assistance after hospitalization? I look forward to being on the other side of it and not having any treatments for a long time, but I honestly feel like I'll be walking into fire as I enter the hospital. Can anyone provide some feedback of the realities of this? Thank you. Wishing you all well!

Hello, I'm a Myeloma patient hoping to undergo a stem cell transplant. I'm wondering if anyone has tried putting ice on their testicles during the stem cell transplant. I was told it could help prevent low testosterone problems? Thanks

The American Cancer Society estimates that over 40% of Americans will be diagnosed with cancer in our lifetime. Yet we still treat it in a very reactive way. We try to learn about our cancer, treatment options, navigating our broken healthcare system, trying to understand our VERY confusing health insurance, and so much more - AT THE WORST POSSIBLE TIME - right when we are diagnosed and having other thoughts clouding our mind like, "OH MY GOD I'M GOING TO DIE". Towards that end, we will be kicking off an initiative called "Educating Towards a Cancer Free Tomorrow where we bring this education BEFORE cancer strikes. The initiative seeks to bring cancer education to our high schools as part of their standard health curriculum. If have interest or think you can provide support, we'd love to hear from you. Mike MikeH@SoCPAnow.com