Hello! I’m newly diagnosed High Risk IgG Kappa light chain SMM (I say that so confidently, considering I’m only vaguely aware of what that even MEANS, lol). My regular Hem/Onc suggests a ‘watch & wait’ approach but when I got a 2nd opinion they said ‘treat now’, so now I’m waiting on a THIRD opinion. I feel scared & overwhelmed. So much information, so many differing opinions! I’m already tired of doctors & blood draws, & all I see is this stretching out lifelong before me like an inevitable death sentence. Please share with me some hope. I’ve been told that as I am very high risk (due to my TP53 deletion & only having 1 kidney) that although I’m technically SMM I might as well consider myself MM already. Anyone else in this (leaky! Lol.) boat?

I used to be able To get into this site so easily now I am having a hard time. Can someone explain to me how I can get into see the videos especially on nutrition and wellness

Hello! I’m Yvette, a social worker from Kenya, supporting Multiple Myeloma patients. One helpful nutrition tip is to eat small, frequent meals throughout the day. This approach helps ensure your body gets adequate calories, nutrients and can also help minimize treatment-related issues like nausea.

OK, potentially weird question. I'm 53, single, only a few months into my diagnosis. SCT coming in October so the next several months are going to be a wash. My only child is starting her senior year in high school, so she'll be out of the house in a year. So I'm thinking that, if my health is stable, I'd like to consider dating again. Is anyone here actively dating? Do you disclose your condition on dating apps?

I'm interested in evidence-based nutrition information for MM, and have recently discovered the work of Dr. Urvi Shah. Dr. Shah has done research with HealthTree and has some videos here as well. I'm eager to learn more about her work and try to put it into action in my life. Here's a brief video: https://www.youtube.com/watch?v=1_mli23UD2M

Everyone shod rat sometime with or without MM's

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Diagnosed Mgus IgGkappa with 0.05 mspike 6/23 . All markers in normal range as of 5/24. 70 on 7/31/24 other then this M spike excellent health no medications, been seeing intern once yr. Hematologist once to just wait and watch mgus markers. Asking for any other proactive treatment, specail diet, other actions to be doing now to reduce m spike and possibly of progression to myeloma??

I'm listening to Beat Back Cancer Naturally by Dominic Brandy, M. D. on Audible and it is helping me make the necessary changes in hope it will make a wonderful difference in my health. Plant based nutrition, specific supplements, exercise, stress reduction. 👍

Hello All, first ever question, however have read prior postings and have gleaned some very informative answers so here goes: Do to issues with side effects my 28 day 10mg Lenalidomide maintenance regimen was reduced to 5mg, 28days. With each delivery comes a patient guide, side effects page, and my insurance carrier's retail price. I had expected a reduction in the retail price as the dose was cut in half and was very surprised that the 5mg price was exactly the same as the 10. Asking if anyone knows and/or understands how prices are determined and set. Things that make me go MMMMM. Thanks in advance for the opportunity.

Hello friends. I am a 53-year-old single mom to a teenage daughter. I was diagnosed on March 20 of 2024. I have high-risk myeloma, with four chromosomal anomalies. Currently on daratumamab, bortezomib, dexamethosone, lenalidomide. I had a spine surgery in April to stabilize the area where the myeloma ate my T1 vertebra. Planning a stem cell transplant for the end of October this year. I have no comorbidities. Every now and again, I look at my test results, genetics, etc. and search PubMed (I work at a med school). The words I see are not good. "Aggressive," "poor outcomes," "mortality." Not sure what I'm asking here. Maybe for hope? Does anyone here have a similar genetic profile?