Community post
Our Journey to MRD-Negative and No Meds
AI-generated title
Yes, a positive share group... this is worthwhile to ignite the flames of hope not be diminished... hey, if it works for someone else, I can hope too!!!
I am only a caregiver for my wife but trust me when I say that MM is not only tough for the patient but for those close as well. Our journey started on mid-2021 but months before had LOTS of dizzy & fainting spells, June diagnosed & verified by bone marrow biopsy July 2021. Followed by 4 cycles of RVD immunotherapy and Melphalan/SCT Dec 2021. This period was mentally & emotionally tough as you grapple with your emotions & the serious & fatal nature of MM, so intense fact finding & research followed plus Eureka moments discovering the many support groups and organizations such as this not only explaining the technical/medical jargon but mainly enlightened by actual shared stories/experiences thru various stages of progression (both failures & successes). Glimmers of hope are kindled as you scroll thru a multitude of cases with the common conclusion that MM is not a regimented procedural certainty but highly individualistic! Each case is the same yet different. It works for others, it doesn't for others but hey, new methods are continually cropping up and new trials opening up... message being Don't Give Up!!! Luckily for us, after a year of Revlimid maintenance, remission &MRD negative with zero maintenance attained on March 2023.... where we've been since then, living life normally with no meds!!! A fairy tale ending which unfortunately we know won't last when reality strikes and it relapses... when, we don't know and what next is unsure but choices and options are there to select from and we'll address that when the time comes. Hopefully there might be some new warriors at their early stage who read this and hope that they too, get a fairy tale ending too.
God bless us all🙏
No comments yet.