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How My MM Diagnosis Saved My Life
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Getting MM literally saved my life! Let me explain:
I was diagnosed in Feb. 2018 and didn't need treatment right away. Then in Jan 2020 I was told I needed spine surgery (unrelated to MM). I had that and then had two Stem Cell Transplants-May 2020 and then in Sept. 2020. Both were 15 days each in isolation because of covid.
I've been in remission since then and I believe it's because we went aggressively at it with the tandem transplants. I do a monthly maintenance regimen with Velcade and Solumedrol and also take Revlimid 3 days per week. I have a very positive attitude and I make treatment day one that I look forward to-because it's keeping me alive!
My spine surgery was the result of the MM original diagnosis - I started doing MRI's, PET scans and Bone scans every six months and they found a benign tumor in my spinal canal and it had tripled in size between June 2018 and Dec. 2019. It was intertwined with spinal nerves and was blocking 90% of the flow of spinal fluid. In fact, when I first met the neurosurgeon at the pre-surgery appt., he was amazed I still had full movement of my arms and legs and said I was very lucky I hadn't had a massive stroke or full paralysis from the tumor because it was blocking so much fluid flow. Surgery was removing 5 inches of my spine to get the tumor out, and then putting in plates and screws to fix. I feel back to normal now but getting MM saved my life! I would have been dead from a massive stroke or would be paralyzed if not for the MRI's, Pet Scans, body scans, etc. that all found the tumor.
My belief is to find the positive in your situation-whatever it is. We're still ALIVE and we have options that many do not have!
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