Your Feed

Filter by
See content from
Back to the latest
Avatar
Sue
Acute Myeloid Leukemia Discussion • June 3, 2025
A Quote That Helped Us Find Strength
AI-generated title
#healthtree #myeloma #aml There is a saying I found that helped my husband and I get through many treatments for AML, maybe someone here will find it worthwhile. It goes like this: "You never know how Strong you are until being strong is the only choice you have" I find this to be so true in my life and I see it in so many coaches that I have had the pleasure to interact with.
Avatar
CarolP
Multiple Myeloma Discussion • June 3, 2025
Managing Low Platelets Post-ASCT?
AI-generated title
Good evening, everyone. I had ASCT last year in September. I had to stop lenalidomide due to low platelets. Recovery is going well except my platelets are low. My Oncologist administered ploygam in March over a few days but still no improvement. I started rituximab beginning of May and so far, the highest i got was 20. I am very concerned and anxious, has anyone experienced this or how have you increased your platelets? I am in South Africa by the way.
Avatar
Rauchka60DAF
Myelodysplastic Syndromes Discussion • June 3, 2025
Tips for Lowering High EPO Levels?
AI-generated title
My EPO is 1753……..in has come down to 910 by stopping my Aranesp injections and adding B12 shots. What else can be down to bring it down to Below 500 so I can go back to my Randal or go to Rebozyl shots???? Also my D3 is 50. Waynjhugh. My HGB is 7.5
Avatar
BruceFan76
Multiple Myeloma Discussion • June 3, 2025
Sharing Promising NYT Article on CAR-T
AI-generated title
In case you haven’t seen this promising article in today’s NY Times, here’s a link: https://www.nytimes.com/2025/06/03/health/multiple-myeloma-car-t-immunotherapy.html?unlocked_article_code=1.ME8.QeiE.RUqxJd54IPHP&smid=nytcore-ios-share&referringSource=articleShare
From No Hope to a Potential Cure for a Deadly Blood Cancer

From No Hope to a Potential Cure for a Deadly Blood Cancer

Multiple myeloma is considered incurable, but a third of patients in a Johnson & Johnson clinical trial have lived without detectable cancer for years after facing certain death.

https://www.nytimes.com/2025/06/03/health/multiple-myeloma-car-t-immunotherapy.html?unlocked_article_code=1.ME8.QeiE.RUqxJd54IPHP&smid=nytcore-ios-share&referringSource=articleShare
Avatar
lubbeyz
Multiple Myeloma Discussion • June 3, 2025
Experiencing Shortness of Breath Post-ASCT?
AI-generated title
Since my ASCT last August, recovery has gone very well. However, I've noticed shortness of breath, and I get winded more quickly while hiking or exercising than before ASCT. A cough comes and goes. I'm on a maintenance treatment of 80mg Kyprolis 2x month, and lenolidamide 3 weeks on 1 week off. Otherwise, just supplemental vitamins. Has anyone else experienced noticeable changes in lung capacity post transplant?
Avatar
aquaVulture
Multiple Myeloma Discussion • June 2, 2025
Applying for LTD for Post-ASCT Brain Fog?
AI-generated title
Has anyone had any experience applying for long term disability due to cognitive effects post autologous stem cell transplant? I am 4 and 1/2 years out. I still have brain fog days and no longer can effectively multitask. Concentration on complex tasks is also an issue. This has been pretty consistent since the transplant. Thankfully still in remission and am on no medications for the last two years.