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djackmac
Multiple Myeloma Discussion • January 11, 2024
Navigating Darzalex Co-pay Assistance?
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I am D. Jack MacConnell and live with wife and son in Catonsville, MD. I was diagnosed in late 2014 with IgA lambda MM at age 77 and was not a candidate for a SCT. I responded well to Revlimid and was on it except for 2020 when I was on Ninlaro but then back on Rev. for a clinical trial at Johns Hopkins Hosp. in 2021 and 2022. I am on Medicare and have a Medigap plan and had co-pay assistance from several organizations so never had out-of-pocket expenses. In late Sept. 2023 I was put on Pomalyst and Darzalex Fastpro and have had 11 Dara injections to date, 9 of them before my latest Healthwell Foundation grant started on Dec. 7. After Medicare and Medigap payments, I am seeing bills for about $1500 per injection; this times 9 is about $13,500 to date! (Assuming that the most-recent two are covered by my grant.) My question: Is there some way to cover this expense? Janssen (maker of Darzalex) has an assistnace program - is it worth applying for? Medicare has the Extra Help program - is that worth applying for? Any advice is appreciated - thanks.
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