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DanielaLum
Multiple Myeloma Discussion • May 1, 2024
Sharing My Story: Diagnosis Shock to Partial Remission
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Hello, I have decided to share my journal because I believe that when we interact with others it helps to have another vision of what we are experiencing. My "case" began on January 26, 2024. When I was diagnosed, I thought that the results were wrong and that there was an error. My diagnosis was: - Plasma cell leukemia (CLL) w/t (14:16) - Multiple bone lesions related to plasma cell neoplasm - Normocytic anemia. At that time I was completely asymptomatic. If it weren't for the results, I thought that the only thing I needed was a blood transfusion to increase my hemoglobin, which was dropping in every blood test from August to November. My family and I were surprised and very confused. I have to give credit to my doctors, nurse practitioners and nurses, who have been excellent to me from the first moment. I started my chemotherapy treatment on 1/29/24. My treatment is based on Daratumumab + VRD, Revlimind and once a month Zometa. On my last visit with the oncologist, he told me that I am already in partial remission. Therefore, we have already started the fifth cycle until we reach six cycles and if everything continues without any problem, I will have the cell transplant for the month of July. It is not until now that the fact that I am sick is sinking in to me and that if I do not continue with all this my life may be very short. Really, if it weren't for all the blood results, bone marrow biopsy and the complete body PET CT, I couldn't believe I was so sick. It is only now that my body is feeling the effects of the chemotherapy. Thank God, the side effects are only now affecting me more. I am more tired physically, mentally and even spiritually. At the beginning of this new year my goals and projects were not these. I thought this was the year that was going to put me where I was going to climb higher in all terrain. But it was not like that. When I read all of your comments, my prayers go to all of you. Because although I haven't had any damage to my major organs and the symptoms I'm having now aren't that bad, it makes me think something like this can be so devastating. Not only for oneself but also for the people around us. I think the time will come when science will find more solutions for all this. I hope I can get this to live a little longer and enjoy life with my family. Not only me, but all of us that are affected by this.
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