Hi Everyone, I had been getting nocturnal night cramps that interferes with my sleep. I’m on quad therapy DRVD. Revlimid seems to be culprit. My magnesium levels are low so they gave me a drip last 2 weeks 2000 mg and 4000 mg. Anyone else have this and how did you improve the magnesium levels? Thank you!

Was anyone on here a part of the Aquila trial for Smoldering Multiple Myeloma? I have some questions about the Dara and overall treatment & outcome . Want to hear from people who actually went through it if possible

Join us for the Tampa Myeloma Roundtable! 🎗️ 📅 April 26, 2025 | 📍 Hotel Alba Tampa | ⏰ 8 AM - 2:30 PM EST Hear from top myeloma researchers, join breakout sessions, and get your questions answered in interactive Q&As. Don’t miss this chance to learn and connect! 🔗 Learn more here: https://healthtree.org/myeloma/community/events/tampa-myeloma-roundtable-2025utm_source=social+media&utm_medium=meta&utm_campaign=RTtampa2025&utm_content=general

I received a stem cell transplant on July 9, 2024 at Northwell Hospital in Manhasset NY using my own blood. Prior to that I was on 25 mg of Revlimid. I’ve been on 5 mg for maintenance since then plus Darzalex Faspro. Because it’s very difficult to digest just about all food, I feel like I’m not improving. I thought digestion would return to normal after Chemotherapy in 2024 but it hasn’t.

A story with a happy ending…there is light at the end of the tunnel. I am 5 Months past my Stem Cell transplant, and feeling great…I would say back to normal. I head out soon for a 4 day golf outing in Florida with my grade school friends, no worries! I am on 5mg of Revlimid for maintenance, and it seems fine. I started feeling almost back to normal after about 90 days. I tolerated the induction, harvesting and transplant pretty well, but the 17 nights in the James had me ready to get back home ASAP. Everything went according to plan! I did my transplant and initial recovery at the James, and they were perfect. I have had two colds, with coughing that each lasted two weeks…but my white blood cells fought it off slowly but surely. I have had my first round of vaccines, no problems. I know it is a long process but hang in there, I believe relief is on its way. My MM was caught early from bloodwork during a routine physical. I was asymptomatic, but had 70% MM revealed from a one marrow biopsy.

If you are on maintenance, how often do you get a PET scan and a Bone Marrow biopsy?

I was diagnosed with stage III MM in 2016 at 58. The MM is high risk IgA light chain. After a stem cell transplant, I went into remission. Since then I’ve relapsed several times. The treatments have caused a level of fatigue that keeps me from working. I hear a lot of people with MM still work whether full-time or part-time. Does anyone else have this level of fatigue? I simply can’t handle a lot of stress anymore. Does anyone else experience this?

Hello, for those of you who are taking venetoclax for maintenance therapy, how many milligrams does your doctor have you taking everyday, and how long have you been taking it? I'm currently taking 400 milligrams/4 pills everyday, and have been doing so for about 4 months now. Just wanted to see if others are taking more or less daily. Thank you

I had a stem cell transplant in 2014. Was told after not get the measles vaccine because it was a live virus. Now measles are going around and was wondering if anyone has gotten the vaccine? Don’t know if I would have any immunity after having the transplant?

I am 31 days post SCT I just want to ask when is the right time to start exercising if that is allow ?

I am smouldering and not in treatment, but during open enrollment last year in the fall, I made sure the usual mm drugs were covered. Now I am finding the formulary is dropping drugs. These are unrelated to myeloma but I am upset to think they can do this during the year. Can they also drop some of the previously approved myeloma drugs? Would I have any recourse?

Hi all~ I’m wondering if anyone in the 55 & under group who has applied and received Social Security Disability would have the time &/or energy to talk with me about your experience. I just applied online in February. Thanks for your help!